Comments on: Would all the posts about research actually amount to anything? http://transabled.org/thoughts/would-all-the-posts-about-research-actually-amount-to-anything.htm Talking about Body Integrity Identity Disorder - Just another disability! Sat, 11 Feb 2012 19:50:52 +0000 hourly 1 http://wordpress.org/?v=3.1.1 By: Sean http://transabled.org/thoughts/would-all-the-posts-about-research-actually-amount-to-anything.htm/comment-page-1#comment-80 Sean Sun, 15 Oct 2006 23:44:42 +0000 http://transabled.org/thoughts/would-all-the-posts-about-research-actually-amount-to-anything.htm#comment-80 I agree, to some degree, that we shouldn't "jump" on people after their first post, about having a narrow focus of only one impairment. But I understand the frustration that derives from having scientist after researcher after reporter come to us and say they want to study amputee wannabes. Frustration also coming from the fact that many amputee wannabes seem to reject the idea that transabled individuals who don't want to be amputees are not suffering from BIID. So, perhaps it's a question of being forcefull without "jumping" on people. I don't know. I agree, to some degree, that we shouldn’t “jump” on people after their first post, about having a narrow focus of only one impairment.

But I understand the frustration that derives from having scientist after researcher after reporter come to us and say they want to study amputee wannabes. Frustration also coming from the fact that many amputee wannabes seem to reject the idea that transabled individuals who don’t want to be amputees are not suffering from BIID.

So, perhaps it’s a question of being forcefull without “jumping” on people. I don’t know.

]]> By: Claire http://transabled.org/thoughts/would-all-the-posts-about-research-actually-amount-to-anything.htm/comment-page-1#comment-79 Claire Sun, 15 Oct 2006 16:13:11 +0000 http://transabled.org/thoughts/would-all-the-posts-about-research-actually-amount-to-anything.htm#comment-79 It's a good thing that the right people are becoming interested, even if they're not getting it quite right. I think it's our job to encourage them to continue and politely educate them. They're new to this, but they've shown the open mindedness enough to want to get involved. If we jump all over them for not completely understanding on their first post, well we're not helping ourselves much. The more they're interested in us, the more we help them, the more they will learn, and the more they can help us ALL in the long run. You and I may be dead of old age before something ever comes of this, but just like everything else worth fighting for, we have to take a broader view and help pave the way for future generations. Of course I'd rather they resolved it all while I'm still young enough to enjoy it! It’s a good thing that the right people are becoming interested, even if they’re not getting it quite right. I think it’s our job to encourage them to continue and politely educate them. They’re new to this, but they’ve shown the open mindedness enough to want to get involved. If we jump all over them for not completely understanding on their first post, well we’re not helping ourselves much. The more they’re interested in us, the more we help them, the more they will learn, and the more they can help us ALL in the long run.

You and I may be dead of old age before something ever comes of this, but just like everything else worth fighting for, we have to take a broader view and help pave the way for future generations.

Of course I’d rather they resolved it all while I’m still young enough to enjoy it!

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