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Transabled Folks Must Change Thinking Patterns!

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Written by Sean on Saturday, January 9, 2010

I was reading a discussion about Body Integrity Identity Disorder on a LiveJournal Transgender board. One of the comment seems to have triggered the crystalisation of a thought I’d had before, without really being able to verbalise it. We shouldn’t say "I need to be paralysed", or "I need an amputation"!

This is a case where language can affect the thinking of people. Let’s face it, most people who hear me say "I need to be paralysed" immediately raise mental blocks. It’s wrong, it’s an abomination, it is *sick*.

And the fact is, what we need is to align our physical self with our mental/emotional self. That is the very basis of our "Desire". Isn’t it?

I think most people can understand the concept of not feeling well in your own body. If we start explaining from that perspective we might have a better chance to get through to people. It isn’t about an amputation, or deafness, or paraplegia, or blindness. It is about feeling better in our own bodies.

The fact that in order to reach our required body image requires a surgery or medical procedure is no different than people requiring breast implants, or a nose job. Admitedly, the amputation of a limb is "more invasive" than breast implants. But it is not all that different than the partial removal of the penis in SRS, is it?

There is a risk that this might trivialise the importance or gravity of our need, yet I believe that is a minor risk.

It’ll take a shift in thinking for many of us, me included. I’ve been saying for so long "I need to be paralysed" that it will be difficult to switch the thinking and saying to "I need to align my physical self to my psychological self, which requires a paralysing surgery". It’s more of a mouthful. Some people may even say it’s pointlessly Politically Correct. Don’t you think it switches the point of view significantly though?

 

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17 Comments

1 On 9 January, 2010, Katie said:

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It’s pointlessly Politically Correct - and I hate Political Correctness as there is only a tiny step to lying in my opinion.

Maybe it makes it easier to describe it that way when you talk to others about it. Maybe their reaction to it is calmer than it would otherwise be.
But just for yourself - would it not be more honest (and therefore easier) to call things by their name?

 

2 On 9 January, 2010, Katie said:

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Very happy new year, by the way - to all of you.
Be careful what you wishes, as it might come true - but may the new year bring you what you most desire!

 

3 On 9 January, 2010, Chloe said:

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The way I most commonly put it to people is “My brain tells me that I’m supposed to be paralysed.” We can get bogged down in semantics. It’s like the latest intersex nonsense. I’m supposed to be “A person with a disorder of sexual development.” Horse crap! There was nothing wrong with “Hermaphrodite” in the first place.

 

4 On 9 January, 2010, Sophie said:

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I had a friend at work yell at me last week when I said Hermaphrodite. My response “That’s simply how my friend described it to me, what’s wrong with that?”

 

5 On 9 January, 2010, Sean said:

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@Katie, I hate political correctness with a passion myself. This idea, which is proving to be controversial already, isn’t about political correctness.. It is about accuracy. I do not want to be paralysed. I do want my body to be aligned with my psyche. And nothing’s worked to changed my psyche.

@Chloe I really like how you phrase it “My brain tells me that I’m supposed to be paralysed”. It removes the immediacy of “I need to be paralysed” and the question “why?” in one shot. I like it.

@Katie, you say “be careful what you wish, as it might come true”. I cannot tell you the number of times I’ve heard that. And how much it annoys the s*** out of me. I know very well what I wish. And I certainly do hope that it come true. The sooner the better.

 

6 On 9 January, 2010, Nobody said:

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Sean, your new phrasing is much more accurate and therefore more truthful. I’m surprised this idea had not crystallized for you before. The new wording describes the problem, instead of specifying how to solve the problem (you could save the “which” clause until later in the discussion). This is a common method of building consensus.

 

7 On 10 January, 2010, Katie said:

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And on top of it I noticed a mistyped twice in that sentence! (But I couldn’t change it later on).

Sorry Sean, I didn’t mean to annoy you at all. Otherwise I would not have written that the New Year may bring you what you most desire.

I read your last few posts about the latest news towards surgery and thought: “This is getting bloody serious now!”

We are in the same boat as I’m living with that problem as well since I was a very young child. And whereas you may be ready for that final step, I’m not. I simply don’t know how I could ever talk to anybody about it face to face, never mind deciding for surgery, in spite of the pressure. And I think there are some more of my sort out there - I didn’t talk about you in person, I rather adressed anybody who reads it, whether that person is ready for it or not.

 

8 On 10 January, 2010, Sean said:

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@Katie, *you* didn’t annoy me. The saying annoys me :) There’s a difference.

I’ve always been deadly serious about becoming a para. Otherwise I wouldn’t have made an attempt a couple years ago. A surgeon just helps making the reality a bit closer. But surgery will NEVER be for everyone. It is important that we all know whether it is something we need or not, and if we need it, if we are ready or not. I am glad you realise you aren’t ready. That is good.

 

9 On 10 January, 2010, Tyrone said:

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Interesting discussion guys and I sure like your change of wording Sean. However which ever way we words it our ultimate goal is the same and surgery is certainly the safest and most controlled method. Surgery is a tailor made solution whether we want T1 or L1 or anything in between yet it is curently unavailable anywhere and thereby lies the frustration.

I really wonder if it was legally available just how many would take advantage of it, I think I would but just the fact of it being available would for me relieve a huge frustration and maybe that would be enough.

As I see it after much research any method other than surgery has life threatening aspects and should not be contemplated under any circumstances.

So the upshot is “I need to align my physical self to my psychological self, which requires a paralysing surgery” and how much longer do I have to wait?

 

10 On 11 January, 2010, Phil said:

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It becomes a stencil and politically correct as soon as one says and writes the exact same words every time, regardless of place, time and person.

It is a good idea to describe what it really is in more words than just: “I should be a paraplegic/amputee”.

The problem in the words “paraplegic”, “amputee”, “blind”, “deaf” etc. is that they all describe “deficits”: something that normally is there but shouldn’t.

I often try to explain it by saying: “I don’t want to have no legs or my legs cut off (in fact I am not keen on surgery, it is just a necessary thing), I want to have two thigh stumps instead”. I try to say how I want to be, not what I want to have off. But the difference is not very big, to be honest.

We could also talk about our real, true, inner, deep identity (as in BIID) and that our soul and body don’t fit at the moment.

I found that it is often important to explicitly say that I do not want to be disabled. It is just my body form that doesn’t go with my soul.

My doctor once expressed it this way: “It seems your sould doesn’t reach down into all of your legs.” Dr. Brugger (Zurich) wrote that the legs (or whatever) are not as “ensouled” as the rest of one’s body.

I would say it is best to say what intuitively comes to one’s mind when talking to a specific person in a concrete situation. But it is good to have thought about different ways to express it before. Thank you, Sean, for your contribution for this kind of preparation.

 

11 On 28 January, 2010, L said:

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(Okay, where was I…? Oh yea!)

So, I guess my idea would be that when trying to explain it to someone who is totally clueless you *may* want to add more words than necessary, unless they know how to get a feel of your emotions. However, in a more casual sense, I would never botch words, because the assumption would be that the person I’m talking to already has a perfectly fair idea of what you actually mean. My point is that whoever you’re talking to will “get it” or not “get it” and if they don’t get it and don’t ask, then they probably shouldn’t be privvy to it anyways. (Now I get to see if I can recover my train of thought after my sister almost looked at this page and post…) That’s pretty much it, so just say what you really mean, and we will understand.

 

12 On 10 February, 2010, WildKat said:

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You say “And the fact is, what we need is to align our physical self with our mental/emotional self.”

How about aligning your mental/emotional self with your physical self?

Does it have to be the way you mentioned, or would you be willing to explore the opposite way?

 

13 On 10 February, 2010, Sean said:

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@WildKat Not only am I willing to explore the opposite way, but I have. Many of us have done a lot to try and resolve the “issue” by psychiatric or psychological means. I have worked with psychotherapists on and off for the better part of 20 years. I have used many different psychology techniques, from straight talk therapy to Cognitive Behavioural Therapy. These helped me better understand myself, but did not touch BIID. Some of my doctors had me try pharmacotherapy. None of the medications I’ve been on made any difference to BIID. The research and medical literature available all point out to the fact that psychotherapy or pharmacotherapy are inneffective to resolve BIID.

 

14 On 10 February, 2010, Chloe said:

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@WildKat: Having learnt so much from your videos and writing, I am glad to see you posting here.

I shall answer your question from my own perspective, but it probably pertains to others as well.

For much of my life I’ve tried to ignore my BIID, repress it, make it go away, think I’d grow out of it, or simply not believe that it could really be possible. It didn’t work. If anything, it has got more intense with age.

It is very much like Gender Identity Disorder. If you have a male gender identity, this is something that you know irrespective of the configuration of your body. An outsider might say “Feel your breasts. Feel your genitalia. It would be much easier for you to accept the fact that you have a female body, and bring your mind into concordance with that.” The reality is that it is not easier; in fact it is almost impossible. I have many transsexual friends, and have witnessed people going through hormone treatments, the social problems of transition, costly and painful surgeries, etc. That is what works.

According to the DSM-IV I am technically not a transsexual, since that and intersex conditions are (erroneously in my opinion) deemed to be mutually exclusive categories. Nevertheless, I had genital surgery to bring my body into better concordance with my female gender identity. The photo of me one day after surgery says everything. The expression of blissful contentment on my face is amazing. I have no reason to suspect that things with BIID will be any different.

I know that you are someone who is stellar at aligning your mental self with your physical self. What can I say? Many of us have tried this and failed. Kudos to you!

 

15 On 10 February, 2010, Elisabeth said:

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I was just wondering, have any of you ever tried hypnosis? Either to get rid of BIID or to acquire paraplegia? I know it’s a successful technique for curing hysterical blindness, deafness, or paraplegia.

 

16 On 10 February, 2010, Chloe said:

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I’ve used self hypnosis since I was a little kid to induce temporary paraplegia. It doesn’t last, but when I was very young it could take as much as half an hour of effort to get out of it again.

 

17 On 10 February, 2010, Sean said:

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@Elisabeth I have used hypnosis to try and have “paralysed moments”, but it hasn’t worked for me. I do regularly use self-hypnosis to help with relaxation. It works.

 

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About Sean

Sean is transabled. His body image is that of an L2 paraplegic. He has been living pretty much 100% of his public life from a wheelchair for the last decade, but hasn't found peace of mind (and is unlikely to until he does become a para).