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To share or not?

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Written by Sean on Wednesday, January 1, 1997

I recently visited with a paraplegic friend that is offering me many insights as to what it is like to be paralyzed (as much as is possible from my non-para side). She also recommended a few books to read. And I thought for a moment I would add the titles to my page, something else to offer for those of us that want to learn about paraplegia, for those of us that feel they need to understand. But then I had a certain shyness come over me. A reluctance to offer this material to the crowds of “hungry devotees” we find out there.

This hesitation stems not from a desire to keep the “loot” to myself. I am not quite sure how to explain this feeling I have. There are some devotees/wannabes out there that don’t spend much time really thinking about deeper issues. I fear that some of us are rather shallow and are just looking for a kick. More power to them if they do get their kick, but I don’t feel right about giving them material that was never meant to be used that way. I guess some of those people are like voyeurs and I don’t feel it is my place to “give a show”, to hand information out.

I don’t have this trouble with emotions and feelings *I* live, since those belong to me completely and entirely.

In a way it may be a similar thing to me not wanting this site as a picture site. There is a non-consensual aspect here that bothers me. Most people that were taken in pictures didn’t know they were and I don’t feel it’s right to expose them without their knowledge and ascent. By the same way, I don’t feel right about talking of some aspects I learn of through books or chats, because I have this sense of not wanting to violate a certain level of intimacy. Is this simply an imagined thing? Perhaps. In the meantime I wont talk about everything here.

On the other hand, I know and realize that there is a lot of information here that could benefit many people. Help them understand, provoke thoughts. Arghhh, the dilemma!!!

That being said, I think I’ll leave this here. I just wanted to mention those issues to you, and perhaps someone will offer me feedback.

 

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About Sean

Sean is transabled. His body image is that of an L2 paraplegic. He has been living pretty much 100% of his public life from a wheelchair for the last decade, but hasn't found peace of mind (and is unlikely to until he does become a para).