Comments on: Psychiatrist tells me “I cannot help you with BIID” http://transabled.org/thoughts/sean-thoughts/psychiatrist-tells-me-i-cannot-help-you-with-biid.htm Talking about Body Integrity Identity Disorder - Just another disability! Fri, 12 Mar 2010 06:48:37 +0000 http://wordpress.org/?v=2.7-beta2 hourly 1 By: Brice http://transabled.org/thoughts/sean-thoughts/psychiatrist-tells-me-i-cannot-help-you-with-biid.htm/comment-page-1#comment-15543 Brice Fri, 22 Aug 2008 12:05:11 +0000 http://transabled.org/?p=816#comment-15543 Hey Sean, I don't know what to say in response other than hang in there, we need you! Hey Sean, I don’t know what to say in response other than hang in there, we need you!

]]> By: Kirsty http://transabled.org/thoughts/sean-thoughts/psychiatrist-tells-me-i-cannot-help-you-with-biid.htm/comment-page-1#comment-15498 Kirsty Tue, 19 Aug 2008 12:14:03 +0000 http://transabled.org/?p=816#comment-15498 Hi everyone I'm currently researching for a documentary about BIID and it would be great to hear from anyone who may suffer from this disorder or who could help me further with my research. It's an extremely interesting area that doesn't seem to get much press and it seems people are suffering in silence so I hope you'll feel it's a good forum in which to air your thoughts. Kirsty Hi everyone
I’m currently researching for a documentary about BIID and it would be great to hear from anyone who may suffer from this disorder or who could help me further with my research. It’s an extremely interesting area that doesn’t seem to get much press and it seems people are suffering in silence so I hope you’ll feel it’s a good forum in which to air your thoughts.
Kirsty

]]> By: Gordo http://transabled.org/thoughts/sean-thoughts/psychiatrist-tells-me-i-cannot-help-you-with-biid.htm/comment-page-1#comment-15493 Gordo Tue, 19 Aug 2008 05:30:54 +0000 http://transabled.org/?p=816#comment-15493 Sean, I'm just curious (or want clarification): why would you be "really f*cked" if you went back to an AB life? Sean, I’m just curious (or want clarification): why would you be “really f*cked” if you went back to an AB life?

]]> By: Sean http://transabled.org/thoughts/sean-thoughts/psychiatrist-tells-me-i-cannot-help-you-with-biid.htm/comment-page-1#comment-15487 Sean Tue, 19 Aug 2008 01:25:53 +0000 http://transabled.org/?p=816#comment-15487 Re the injection. It's not really an option though. First, doctors won't do it without ethics committee approval, and that's most unlikely to be given. And I'd be really hesitant to have someone that doesn't have basic medical training do the injection. Second, and this is a real tricky one, when the alcohol starts to wear off, or rather when the nerve regenerates, intense associated nerve pain is happening. Not Good At All. Chloe, as for wheeling... It does make a world of difference. It was enough to sustain me for several years after I went full time. But it's not enough for me anymore. I could not go back to an AB life, without the chair I'd be really f*cked, but the chair isn't quite enough either. Re the injection. It’s not really an option though. First, doctors won’t do it without ethics committee approval, and that’s most unlikely to be given. And I’d be really hesitant to have someone that doesn’t have basic medical training do the injection. Second, and this is a real tricky one, when the alcohol starts to wear off, or rather when the nerve regenerates, intense associated nerve pain is happening. Not Good At All.

Chloe, as for wheeling… It does make a world of difference. It was enough to sustain me for several years after I went full time. But it’s not enough for me anymore. I could not go back to an AB life, without the chair I’d be really f*cked, but the chair isn’t quite enough either.

]]> By: Sophie http://transabled.org/thoughts/sean-thoughts/psychiatrist-tells-me-i-cannot-help-you-with-biid.htm/comment-page-1#comment-15485 Sophie Tue, 19 Aug 2008 00:47:47 +0000 http://transabled.org/?p=816#comment-15485 I would go for that alcohol option if all else failed, obviously I would prefer a proper spinal cord injury but beggers can't be choosers can they? I'm glad to see the visit wasn't a total bust even though it was more for the psychiatrist's sake than yours. I would go for that alcohol option if all else failed, obviously I would prefer a proper spinal cord injury but beggers can’t be choosers can they?

I’m glad to see the visit wasn’t a total bust even though it was more for the psychiatrist’s sake than yours.

]]> By: Chloe http://transabled.org/thoughts/sean-thoughts/psychiatrist-tells-me-i-cannot-help-you-with-biid.htm/comment-page-1#comment-15483 Chloe Tue, 19 Aug 2008 00:32:23 +0000 http://transabled.org/?p=816#comment-15483 Ditto Gordo. I'd totally go for the alcohol :) Ditto Gordo. I’d totally go for the alcohol :)

]]> By: Chloe http://transabled.org/thoughts/sean-thoughts/psychiatrist-tells-me-i-cannot-help-you-with-biid.htm/comment-page-1#comment-15481 Chloe Tue, 19 Aug 2008 00:25:30 +0000 http://transabled.org/?p=816#comment-15481 Today was the tenth continuous day of being out and about in my wheelchair; all day every day. Today was also the last visit to my psychotherapist. When I wheeled into his office he said "Wow, you look happy!". Yes, I am happy. We both understood that ten days in a wheelchair has done far more to lift my mood and manage BIID than any psychotherapy could ever achieve. Don't get me wrong. The psychotherapy was great. It enabled me to unravel many complexities of how BIID interacts with other aspects of my life. It just doesn't do anything for BIID itself. I realise this isn't going to help you in the slightest, Sean. Ten days in a wheelchair is massively different from twelve years. It is new and exciting for me. I can see where I'm headed. It is where you are. Except I don't think I'll last twelve years. I am an optimist. We will find solutions. Today was the tenth continuous day of being out and about in my wheelchair; all day every day. Today was also the last visit to my psychotherapist. When I wheeled into his office he said “Wow, you look happy!”. Yes, I am happy. We both understood that ten days in a wheelchair has done far more to lift my mood and manage BIID than any psychotherapy could ever achieve.

Don’t get me wrong. The psychotherapy was great. It enabled me to unravel many complexities of how BIID interacts with other aspects of my life. It just doesn’t do anything for BIID itself.

I realise this isn’t going to help you in the slightest, Sean. Ten days in a wheelchair is massively different from twelve years. It is new and exciting for me. I can see where I’m headed. It is where you are. Except I don’t think I’ll last twelve years.

I am an optimist. We will find solutions.

]]> By: Gordo http://transabled.org/thoughts/sean-thoughts/psychiatrist-tells-me-i-cannot-help-you-with-biid.htm/comment-page-1#comment-15478 Gordo Mon, 18 Aug 2008 23:59:47 +0000 http://transabled.org/?p=816#comment-15478 The alcohol thing sounds interesting. If it was available, I'd definitely go for that. Even if some function eventually returned (ie. 50% of the function I had before), I'd still welcome it. 50% towards where I need to be is better than 0%. The alcohol thing sounds interesting. If it was available, I’d definitely go for that. Even if some function eventually returned (ie. 50% of the function I had before), I’d still welcome it. 50% towards where I need to be is better than 0%.

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