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In Response To Fab Matters’ Questions
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Written by Sean on Sunday, November 15, 2009
I try to keep an eye out for what people outside the BIID community have to say about BIID and about us. Yesterday I came across an interesting post on fab matters, which describes itself as "transgender politics through a feminist lens". Miska, the site owner, poses some interesting questions.
The post is simply called "The Transabled". The initial 4 paragraphs are pretty neutral and quite an accurate description. I thought it was a good start to the piece. Then the questions started, and they felt somewhat passive-aggressive. Not so good. Let me attempt to answer the questions here. I can obviously only answer from my own perspective, and I don’t claim to speak for anyone other than myself.
Well, what I want to know is if transabled people will expect disability activists to welcome them with open arms.
I don’t expect anyone to welcome me with open arms, although it would be nice if it happened. I don’t want to be judged for what I am (transabled), as I have no choice over that. I prefer to be judged by my actions, and I do believe that my actions in terms of disability right activism speak for themselves. In fact, I’ve been told by several disability rights activists that I "got it" better than many people with disabilities.
What I don’t want to see is the automatic knee-jerk reaction (pun intended) of many people with disabilities that gets them to say and express that we’re "sick", and "need help", and where we’re immediately discarded, and ostracised.
And if transabled people will demand that disability activists open all their volunteer and specialty services to them.
If I read between the lines, what I’m seeing here is the fear that we’d "steal" precious and limited services, and invade a space that "doesn’t belong" to us, and further, a space where WE don’t belong.
For me, it’s a two-way avenue. I’ve gotten some immense benefits from having access to services. And at the same time, I’ve given back immensely as well. Yes, I’ve even provided peer support to guys who were paraplegic. I can hear the outrage from here. But you know what? The guys I worked with actually felt better about themselves afterwards. They managed to find their own solutions to issues they were facing. They were better off from having interacted with me.
I’ve participated in many disability rights protests and actions. The reason I use a wheelchair is irrelevant. The issues are the same, and I am fighting against oppression. I’d fight oppression regardless of my use or non-use of a wheelchair.
And if transabled people will insist there is such thing as an innate “ability identity”, and that the brains of transabled and disabled people are wired differently from able-bodied people.
There is evidence that there is a neurological aspect to BIID. The brain of transabled folks do show significant differences. Does that qualify as "ability identity", probably not. To me, however, what creates identity is not solely hard-wiring, but life experiences. And people who have physical impairments share many experiences, whether they like it or not, with transabled folks.
And if transabled people will insist that disabled people are privileged over them, because society takes their disability seriously, but treats theirs like a joke.
I don’t know if I would say "privileged", but there is truth to the idea that society, including people with disabilities, dismiss BIID as nasty thing. Though that’s not all that different from how people with mental illnesses are being treated by society and the disability community at large. It is entirely too easy to dismiss something that you can’t see.
It is entirely too easy to decide that "if we wanted it bad enough, we could just set it aside". That comment is no different than able-bodied individuals telling someone with a spinal cord injury that they aren’t walking because they don’t want it bad enough, that they aren’t working at it hard enough.
There is definitely a hierarchy in the world of disabilities, where quadriplegic are better than paraplegic, who in turn are better than those who are ambulatory, and blind folks are in a class of their own. People with mental illnesses are way at the bottom of the pile. And people with BIID are further down, too often treated like pond scum.
No, it’s not a question of privilege. But perhaps there is a question of doubting the validity of transabled folks’ feelings. And that’s the bit that hurts. Because when you question the validity of my emotions, you question me, and my right to exist.
And if transabled people will deny that they ever experienced able-bodied privilege, because they have always “felt disabled”.
I cannot and will not deny that I have had serious advantages as an able-bodied individual. Even though I don’t like my functionning legs, I cannot deny that they do, in fact, function. And I will readily admit to using that to my advantage.
Chloe put in words a feeling I’d been trying to express for years without being able to verbalise it properly. She said:
I’m not using a wheelchair to treat paraplegia; I’m using it to treat BIID. There is a difference. I don’t feel a need to pretend to myself that I’m paraplegic. I know that I’m not paraplegic.
So yes, because of BIID, I use a wheelchair 100% of my time in public. I "only" use the chair about 50% of the time I am at home. This angers some people with disabilities I know. I get a sense that they think I should either do it all the time, or not at all. I would MUCH rather actually be paralysed and have no choice in the matter.
And if transabled people will deny that they have ever oppressed disabled people, because they always empathized with them, and wanted to be like them.
I have never knowingly oppressed anyone, disabled or not. I am sure that some of the things I’ve done could be considered oppressive by some, but these were likely the result of cultural heritage and lack of awareness on my part.
But I *fight* oppression. It would be hypocritical of me to turn around and oppress people. I’ve always been somewhat fascinated how people who belong to "discriminated classes" can so harshly turn around and discriminate against other classes. Transgendered individuals are often very good at that. Some of the most violent and vilest attacks on me, as a transabled individual, have come from transsexuals.
And if transabled people will insist that people who have been disabled from birth are privileged, because at least society has always treated them as disabled.
I don’t think that being treated as disabled by society, knowing how society treats people with disabilities, is such a privilege.
BIID isn’t about privilege. Heck, anyone who knows how people with disabilities are treated in our society would be a fool to think we seek a physical impairment for "the privilege".
And if transabled people will expect disability activists to devote their time and energy in addressing the specific needs of the transabled.
I don’t expect disability rights activists to devote time and energy addressing my needs as a transabled individual. However many of my needs are quite similar to the needs of other people with disabilities. I don’t so much want their support, although it would be nice, as hope they won’t fight against me and my need.
And if transabled people will insist that their desire to be disabled has nothing to do with sexuality, and is not a fetish. Ever.
For some people who have BIID, there is a strong sexual aspect to their desire to have a physical impairment. Not for most transabled folks. Obviously there is always a sexual element, in as much as sexuality is a natural part of every aspect of most people’s lives. I’m certainly not turned on at the idea of being paraplegic. Heck, if I were, I wouldn’t be able to have sex as I know it now, considering genital dysfunction and lack of sensation that usualy happens with a spinal cord injury.
I find it interesting that Miska links the word fetish to a Wikipedia article about a theory by Ray Blanchard, a man that has done some work in the GID field, and who is generally perceived as a "quack" by the very community he’s studied. I question his conclusions and theories, and don’t think we should give much credibility to them. This is not solely because I disagree with his findings.
There are people I don’t necessarily agree with who have written about BIID. People such as Carl Elliott, or Nikki Sullivan. They’ve written stuff I don’t agree with, but their writing is solid and isn’t so controversial.
And if transabled people will expect disabled people to recognize that they have always been disabled “inside”, even when they were living in an able body.
You betcha! I *am* disabled, even though I don’t have a physical impairment. Right here, right now, I qualify as a person with a disability. My disability is a mental/emotional one. And I’ve had this condition for as far back as I can remember. Under the Americans with Disabilities Act, a person has a disability when they:
- have a condition,
- have a history of having a condition, or
- are perceived as having a condition
which significantly affect one or more activities of daily living, such as walking, thinking, eating, talking, etc.
Because of BIID, I have been unable to function for long periods in my life. Unable to work, go shopping, heck, unable to even get out of bed, even when I needed to go to the toilet. That’s how bad it gets. Under those terms, I *am* disabled.
Of course there are those who will say that doesn’t count.
It is not my fault that I need to be paralysed and that my body is not paralysed. It is not my fault that my disability is not the one I need. But it is no less real.
And if transabled people will insist that disabled people must not differentiate themselves from them in any way, unless it is to acknowledge their privilege over transabled people.
We’re all different. People who are paralysed are different to people who are blind who are different to people who are deaf. We’re ALL different, and the differences enrich our world. But we ought not to focus on these differences. Not if it’s a case of distancing ourselves. It’s one thing to celebrate difference (and don’t you know, disability rights activists *want* society to view disabilities as just a difference). It would seem hypocritical to use that difference as a way to set an entire group of people aside. That is known in other areas as "discrimination" and "oppression".
And if transabled people will insist that disability activists must not critique or analyze transableism, because to do so invalidates their lived experiences, and is TRANSPHOBIC!
I see nothing wrong with analysis or critique, as long as it is done with an open mind and a neutral approach. Too many times, people start critiquing without really getting informed about the issues. Too many times the critique is not made to help improve the common good, but is there to separate and ostracise even more. And if you’re prepared to critique, don’t get upset if we turn around and point the parts of your discourse that don’t make sense, or that based on ill-informed assumptions.
Why do I feel like all those questions were asked in a passive-aggressive tone? Why do I feel that Miska wasn’t really interested in the answers? Why do I feel that Miska was using BIID as a platform to rant against the transgendered community? I don’t know, I hope I’m wrong. I feel a lot of anger coming from her. I’m not saying the anger isn’t justified, as a feeling. But I think it’s pointless to use it like that.
Disability activists – you have been warned.
And that final word of Miska’s post upsets and saddens me. It’s NOT a contest, it’s not a fight. We’re all in this TOGETHER. Why set people up to be distrustful from the get go?
Tags: Activism, BIID, Disability, disability rights, fab matters, Miska, Transabled, Transgender
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18 Comments
2 On 15 November, 2009, Sean said:
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@Miska, thank you for taking the time to read the post. I was going to let you know about it, but I guess you already saw it :D
I hear what you are saying. That said, you’ll forgive me I hope, but I find it offensive to be used as a rethorical argument against someone else.
And the idea that we “wish” to be disabled undermines the devastating effects of having BIID. You make it sound like it’s a fancy, which it is not.
3 On 15 November, 2009, Joce Claire said:
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Very interesting response. I agree with you that mental illness is indeed a disability and should be recognized as such.
I do wonder how much you’ve read about privilege, oppression, and power, though. You don’t deny being privileged over physically disabled people, which I appreciate, but you’re definitely oppressing people, even if you don’t *mean* to. Men (and especially white men) are raised and trained by society to oppress women and less privileged people a million different ways, big and small, without ever noticing it. It’s not something you can correct or even see until you really educate yourself and start to pay attention.
4 On 15 November, 2009, Sean said:
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@Joce, everyone oppresses someone in one way or another. That’s how it goes. Even the most educated person about oppression does it. To accuse me of being an oppressor merely because I am a man seems a bit of a scattergun approach. Mind you, I’m not arguing the toss.
Your assumption I am a *white* man is, in itself, oppressive. The name you see here may not be my real name. I could very well come from First Nations heritage. My tribe could in fact be a matriarchal society… Just sayin’.
As for my readings on privilege, oppression and power… Without justifying myself to you, or anyone else, let’s just say that I have done enough studies in that area (admitedly focusing mainly on disability issues) to hold my own with many disability scholars.
The overall feeling I got from Miska’s questions you quoted was fear, which is the usual basis of anger.
Here’s a possible explanation for
“Some of the most violent and vilest attacks on me, as a transabled individual, have come from transsexuals.”
In my limited awareness of the relevant history, trans people have made terrific strides in the past 40-50 years, so that transitioning these days is a lot less unusual, and a lot less unacceptable, than it used to be. So now they see this transablism movement budding, and they are terrified that the acceptability of transsexualism might be again called into question. They do not want any line of inquiry to push their pendulum back the other way. Thus, they strenuously distance themselves from, and focus their well-honed sense of group-level self-defense on, our movement and its main proponents.
6 On 16 November, 2009, Phil said:
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“To a man with a hammer, everything looks like a nail.”
That’s what “through a feminist lens” means.
7 On 16 November, 2009, Joce Claire said:
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I never said you were a white man, I said white men are trained from birth to be the most oppressive. And no, you could not be from a “matriarchal” society because such a thing does not exist anywhere in the world.
And I know there are multiple oppressions, and I would never claim to be free of my own white privilege, middle-class privilege, able-bodied privilege, thin privilege, etc. Privileges and oppressions are cumulative and intersecting.
8 On 16 November, 2009, Miska said:
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“To a man with a hammer, everything looks like a nail.”
That’s what “through a feminist lens” means.”
Yep. My blog is designed with a very specific intention in mind – to apply a feminist analysis to transgender politics. So naturally, it contains feminist analysis. That’s the whole point.
Sean:
I responded to a comment you left, and asked this question -
“You mention pharmacotherapy – Is there any serious research being done into pharmacological treatment? And if there was an effective treatment would you (and the members of your community) still campaign for surgery to be made available as an alternative option?”
I am really interested in the answer. I realize that my blog probably feels quite hostile to you, so I understand if you don’t feel comfortable answering me there. But I would really appreciate it if you could clarify your position regarding this.
Thanks,
Miska.
9 On 16 November, 2009, Sean said:
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@Miska, you ask good questions. It is late here, and I cannot do justice to your question. I will respond tomorrow.
10 On 16 November, 2009, Phil said:
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Looking at the world through one lens is something I find a bit boring, because the outcome is clear even before you look… One doesn’t really LOOK, but search for things that fit into one’s prejudices.
You wrote: “I said white men are trained from birth to be the most oppressive.”
I would say that is another big prejudice and generalisation. Generalisations don’t solve any problem, they are the problem, and theories of this kind lead nowhere.
I am gay and I have been oppressed to some extent. And I am a white man.
@Joce Claire: I visited your website and have to admit to being a bit shocked regarding the oppressive nature of your writing. You give the impression of attempting to impose your socially constructed gender binary system on all of humanity. I and many other hermaphrodites find this both offensive and oppressive. You don’t even say what you mean by the words “man” and “woman”, yet you use the words freely as if such binary language is able to change the reality of the continuum. You talk about being raised as a girl or raised as a boy as if those are the only two options. They are not. Just talk to anyone with 5alpha-reductase deficiency.
You object to the term “feminist men”. Do you object to the term “feminist hermaphrodites?” I have long considered myself a feminist. Am I therefore objectionable to you.
Do you have first hand knowledge of how men in our culture are oppressed? As a hermaphrodite I have spent part of my life presenting as androgynous, part presenting as a man, and part presenting as a woman. My personal experience is that hermaphrodites are more oppressed than men, and men are more oppressed than women. It is often a matter of perspective. As you know, there is a large segment of feminist scholarship supporting the contention that in our society men are more oppressed than women. My first hand experience supports this hypothesis.
We also seem to be reading different anthropological sources. I am very wary of people who say things like “such a thing does not exist anywhere in the world”. I am reminded of the coelacanth.
In general I would have to agree with Phil. Wisdom and understanding come by looking at things from many different points of view.
It is interesting how different elements of one’s life intersect; e.g. gender oppression and BIID.
The bail locks and drop locks on KAFOs each have their own advantages and disadvantages. One of the reasons I like a bail lock for my left leg brace is that it can be readily operated with my imaginary stump where I actually have a left hand. My impression is that drop locks require more dexterity.
A disadvantage of a bail lock is that the lever takes up some room behind the knee. None of my pants works with my leg brace. Fortunately I’m a woman, so I can wear skirts all the time. What is a man with a left hand amputation and a left leg brace supposed to do? I suppose there are extremely baggy trousers, but that’s an ugly solution in my opinion.
Restriction of acceptable clothing is one of the many ways in which men are more oppressed than women in our society. I have friends, who are unambiguously male in every respect, who are heterosexual, who are not cross-dressers, who have no desire to appear female; and yet prefer to wear dresses, because they are more comfortable. There is a huge social sanction against such behaviour in our society, in distinct contrast with the liberty which is granted to women.
My friends resort to wearing dresses made for men from other cultures, such as India, where such behaviour is entirely asseptable.
The fight against the oppression of women is inseparable from the fight against the oppression of men. Try Marge Piercy’s “Woman on the Edge of Time” for excellent feminist fiction addressing this topic.
13 On 18 November, 2009, Heaven said:
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Chloe, strictly speaking, it isn’t possible for you to have (personally) experienced that “hermaphrodites are more oppressed than men,” or that any other group is more oppressed than any other group, as you are only one person. When it comes to oppression of whole groups of people, that can only be verified on a large scale. As an individual, there are a large number of factors that affect how you were treated, and some of them may have had nothing to do with gendered oppression.
I cannot imagine what would move you to state that which, (of men or women) is oppressed more is “often” a matter of perspective. In most places in the world, it is glaringly obvious that women are oppressed more, so Are you restricting your analysis to places like the U.S. and Western Europe (it isn’t clear what society you are referring to when you use the phrase “in our society”)?
Hello Heaven,
I am in agreement with you. Thank you for bringing attention to my overly sloppy use of language. Indeed, by definition, my personal experience refers only to myself rather than to a group. Of course you are correct in saying that how I perceive I am treated is dependent on more variables than gendered oppression alone.
My use of “our society” is particularly egregious. I have lived only in the U.S. and Western Europe, so that is my point of reference. I have the impression that most people visiting this site are from those or closely related cultures. However, that is not an excuse. I apologise for my inappropriately exclusive use of language. I did not intend my comments to be globally applicable.
Certainly, there are other places in the world where the situation is radically different. With regard to my mention of clothing, there are countries where men are allowed to wear dresses yet women are flogged for wearing pants.
Regarding perspective, the point I wish to make is that sometimes it does indeed depend upon the individual as to whether they are or are not bothered by a particular oppressive rule of their society. One thing to remember is that ALL groups are oppressed: women, lesbians, people with disabilities, hermaphrodites, ethnic groups, people with BIID, and yes, white males too. The cluster of oppressive rules is different for different groups, although there may be some overlap. No one group should be making assumptions about the nature of the oppression of a different group. One always has to ask.
There are two fallacies resulting from the lack of asking that often come up on this website. One is that many able bodied people perceive that PWDs have an appalling quality of life. This is generally not how PWDs see themselves. The thinking error occurs because one group is merely guessing about another group, without making any effort to find out the real information. The same thinking error sometimes happens when people who do not have BIID come to this website. Some of them make assertions about BIID from the outside, instead of simply asking *us* what it’s like.
I spent a good deal of time in the 1980s participating in feminist groups. I am very thankful to have been fully welcomed into those womens’ spaces, which I very much needed, despite my being completely open about being a hermaphrodite. One thing I noticed as individuals matured was a shift in their perspective. Feminists often start out in an angry phase where they make assumptions about other groups. I know what it’s like. I’ve been there. Feminist scholarship regarding the oppression of men dates at least as far back as the early 1970s to the best of my recollection, but it seems to be rediscovered as each generation matures. Eventually one discovers that the best way to find out what it’s like to be a man is to ask. Making assumptions from the outside gets one nowhere. I’m not saying it’s an easy task. One of the common oppressions of men is that they are socialised into not talking about their feelings. However, it is indeed possible to get honest answers provided that the approach is not antagonistic.
I had one of those “aha” moments some years ago when I was seeing a psychotherapist about intersex related issues. She pointed out to me that while men and women inhabit different boxes of oppression (in the U.S.), the box for women is bigger. There is more room to move about.
I can’t leave the issue of gender oppression without mentioning the topic of genital cutting without informed consent. In some countries such female genital cutting is commonplace. The hypocrisy of groups in the U.S. working against this outrages me. I have not seen a single footnote about the same horrendous practice commonly being done to hermaphrodites in their own country. This is another example of an oppression targeted primarily against men in this country (U.S.). The majority of ambiguous infant genitalia surgically altered without consent is in the female direction. Consequently the largest group of pissed off hermaphrodites are men who had their penises chopped off when they were babies. Yet we can’t get surgery for BIID!!!
Thanks for your input, Heaven. I like your blog too. Good stuff.
@ Joce
While the numbers may be limited, there are still a few matriarchal societies left in the world, most notably Sumatra and some regions of China.
wow. i’m super confused. how on earth could someone wish to be a parapalegic and how on earth does that relate to being transgendered. wonders never cease at the amazing things people will think of
and I suppose i’m going to be told that i have some sort of privilege because i don’t get it. some non-biid privilege or something.
baffled
17 On 7 June, 2011, Sean said:
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Grace asks:
how on earth could someone wish to be a parapalegic
The need (note, not the wish) to be paraplegic is one of several manifestations of Body Integrity Identity Disorder (BIID). Other manifestations take the shape of needing to be an amputee, or blind, or deaf, or other physical impairments. It is weird. But it is.
how on earth does that relate to being transgendered
I don’t believe there is a direct relationship between BIID and GID. But there are more similarities in terms of lived experiences than there are differences. Feeling ill at ease in one’s own body, being rejected by family, being ostracised by society, early (4-5 years old) manifestation, feelings of guilt, shame, embarassement, and the list goes on.
@grace, it looks like you didn’t take much time to read anything on this site – your questions have been answered multiple times. Do take some time to read and try and understand. Thank you.
Grace says “Wonders never cease at the amazing things people will think of.” I don’t have the impression that I “thought” of having BIID any more than I thought of being intersexed. They are both expressions of the beautiful diversity inherent in the nature of being human. It does take a certain maturity to get beyond feeling that everyone on the planet is supposed to be just like oneself. Getting beyond that insecurity and truly celebrating our differences is a joy indeed.
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1 On 15 November, 2009, Miska said:
Hello Sean,
As fab matters is my blog and I am the author of the post you quote, I feel I should respond to you.
The answers you supplied to my (rhetorical) questions are informative, and I appreciate the effort you have put into articulating your position. But I do want to mention that my primary concern is with transgenderism (and its implications for women and feminism). The sole reason I drew an analogy to transableism was to underscore the ways transgender activists are behaving towards women and feminists – in what was essentially a rhetorical exercise.
I realize that transableism is a very personal issue for you, so I understand your need to clarify yourself in light of my post. I do not believe that transableism represents as great a threat to disability activists and disabled people as transgender activists do to women and feminists – mainly because society has far more sympathy for people who wish to change genders than for people who wish to be disabled.