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	<title>Comments on: Choice, experience, authenticity and oppression.</title>
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	<link>http://transabled.org/thoughts/sean-thoughts/choice-experience-authenticity-and-oppression.htm</link>
	<description>Talking about Body Integrity Identity Disorder - Just another disability!</description>
	<pubDate>Wed, 09 Jul 2008 03:10:00 +0000</pubDate>
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		<title>By: Sean</title>
		<link>http://transabled.org/thoughts/sean-thoughts/choice-experience-authenticity-and-oppression.htm#comment-14457</link>
		<dc:creator>Sean</dc:creator>
		<pubDate>Sat, 26 Apr 2008 21:28:38 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/thoughts/choice-experience-authenticity-and-oppression.htm#comment-14457</guid>
		<description>Jocelyn, I deleted your comment, merely because I felt it was too important to leave "lost in the middle of comments".  I'll use your letter as a starting point for another post, in which I shall answer your question.</description>
		<content:encoded><![CDATA[<p>Jocelyn, I deleted your comment, merely because I felt it was too important to leave &#8220;lost in the middle of comments&#8221;.  I&#8217;ll use your letter as a starting point for another post, in which I shall answer your question.</p>
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		<title>By: Sean</title>
		<link>http://transabled.org/thoughts/sean-thoughts/choice-experience-authenticity-and-oppression.htm#comment-14414</link>
		<dc:creator>Sean</dc:creator>
		<pubDate>Wed, 23 Apr 2008 03:04:01 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/thoughts/choice-experience-authenticity-and-oppression.htm#comment-14414</guid>
		<description>Ronald, hope it wasn't anything nasty that kept you offline :)

Yes, you are correct.  While I enjoy personal acceptance, that's not really the point.  My "work" is all about getting BIID known and accepted.  By the disability community, and the medical community, etc.

Someone just told me that they just want to change their world.  Me, I think that in order to change "my" world, to get surgery, the only way I have is to change "the" world, to get society, and the medical establishment to accept BIID as a real condition, and to accept surgery as the only viable option.  There may be other options later on, but at the moment, surgery's the only thing that works.</description>
		<content:encoded><![CDATA[<p>Ronald, hope it wasn&#8217;t anything nasty that kept you offline :)</p>
<p>Yes, you are correct.  While I enjoy personal acceptance, that&#8217;s not really the point.  My &#8220;work&#8221; is all about getting BIID known and accepted.  By the disability community, and the medical community, etc.</p>
<p>Someone just told me that they just want to change their world.  Me, I think that in order to change &#8220;my&#8221; world, to get surgery, the only way I have is to change &#8220;the&#8221; world, to get society, and the medical establishment to accept BIID as a real condition, and to accept surgery as the only viable option.  There may be other options later on, but at the moment, surgery&#8217;s the only thing that works.</p>
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		<title>By: Ronald</title>
		<link>http://transabled.org/thoughts/sean-thoughts/choice-experience-authenticity-and-oppression.htm#comment-14413</link>
		<dc:creator>Ronald</dc:creator>
		<pubDate>Wed, 23 Apr 2008 02:45:16 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/thoughts/choice-experience-authenticity-and-oppression.htm#comment-14413</guid>
		<description>Sean, thanks for the reply. I have been offline for a while.  Am I correct in assuming that in terms of acceptance, it is the acceptance of BIID itself as a disability over a personal acceptance of yourself by the disabled community?</description>
		<content:encoded><![CDATA[<p>Sean, thanks for the reply. I have been offline for a while.  Am I correct in assuming that in terms of acceptance, it is the acceptance of BIID itself as a disability over a personal acceptance of yourself by the disabled community?</p>
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		<title>By: paris</title>
		<link>http://transabled.org/thoughts/sean-thoughts/choice-experience-authenticity-and-oppression.htm#comment-14398</link>
		<dc:creator>paris</dc:creator>
		<pubDate>Sat, 19 Apr 2008 22:02:42 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/thoughts/choice-experience-authenticity-and-oppression.htm#comment-14398</guid>
		<description>Great post, Sean. I was thinking about this very aspect recently, so it was timely for me. I suspect that the path towards BIID "acceptance" (for lack of a better word) within the various communities (disabled, etc.) may lead to some uglier encounters, if history is any guide. Take for example the recent debate over gay rights, where the US Congress put forth a gay rights bill that excluded transgendered people, setting off a debate within the community between "regular" gays and transgendered folks. In short, many within the gay community took the position that it was better to achieve some level of recognition for themselves now by excluding TGs, rather than band together, fight as one unit and risk defeat. (Read John Aravosis' blog for some of the worst of this faulty thinking.) BIID sufferers should gird themselves for the same kind of rejection within the disabled community, or other communities, and be prepared to face it with positivity and insight.</description>
		<content:encoded><![CDATA[<p>Great post, Sean. I was thinking about this very aspect recently, so it was timely for me. I suspect that the path towards BIID &#8220;acceptance&#8221; (for lack of a better word) within the various communities (disabled, etc.) may lead to some uglier encounters, if history is any guide. Take for example the recent debate over gay rights, where the US Congress put forth a gay rights bill that excluded transgendered people, setting off a debate within the community between &#8220;regular&#8221; gays and transgendered folks. In short, many within the gay community took the position that it was better to achieve some level of recognition for themselves now by excluding TGs, rather than band together, fight as one unit and risk defeat. (Read John Aravosis&#8217; blog for some of the worst of this faulty thinking.) BIID sufferers should gird themselves for the same kind of rejection within the disabled community, or other communities, and be prepared to face it with positivity and insight.</p>
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		<title>By: Sean</title>
		<link>http://transabled.org/thoughts/sean-thoughts/choice-experience-authenticity-and-oppression.htm#comment-14351</link>
		<dc:creator>Sean</dc:creator>
		<pubDate>Sun, 13 Apr 2008 01:25:08 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/thoughts/choice-experience-authenticity-and-oppression.htm#comment-14351</guid>
		<description>Lots to it, actually Ronald :)

First, I regret that my post creates a bit of an "us vs them" perception.  But we have that situation, somewhat.

We have a disability - BIID.  As such, we are part of the disability community, just as those with other mental illnesses are part of the disability community.  Only those who have physical impairments would prefer to keep us at bay.  We have far more in common with them than we have with a non-disabled society.  I believe in powers in number and if we could band together instead of fighting, we are likely to get much further along.

Second, and this is really a very brief explanation of something I have been wanting to write about for a while, I believe that one of the major blocks for surgery as an option for us is the negative bias the medical community at large has against people with disabilities.  Disability rights activists have been fighting hard to get accepted, and their plight is also ours.  I think they have to succeed in convincing the medical establishment that impairments are nothing negative, per se.  Then, and only then, can doctors readily accept that someone might wish to acquire an impairment.  Again, we can do our bit, but only if we stand/sit united will we win.</description>
		<content:encoded><![CDATA[<p>Lots to it, actually Ronald :)</p>
<p>First, I regret that my post creates a bit of an &#8220;us vs them&#8221; perception.  But we have that situation, somewhat.</p>
<p>We have a disability - BIID.  As such, we are part of the disability community, just as those with other mental illnesses are part of the disability community.  Only those who have physical impairments would prefer to keep us at bay.  We have far more in common with them than we have with a non-disabled society.  I believe in powers in number and if we could band together instead of fighting, we are likely to get much further along.</p>
<p>Second, and this is really a very brief explanation of something I have been wanting to write about for a while, I believe that one of the major blocks for surgery as an option for us is the negative bias the medical community at large has against people with disabilities.  Disability rights activists have been fighting hard to get accepted, and their plight is also ours.  I think they have to succeed in convincing the medical establishment that impairments are nothing negative, per se.  Then, and only then, can doctors readily accept that someone might wish to acquire an impairment.  Again, we can do our bit, but only if we stand/sit united will we win.</p>
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		<title>By: Ronald</title>
		<link>http://transabled.org/thoughts/sean-thoughts/choice-experience-authenticity-and-oppression.htm#comment-14349</link>
		<dc:creator>Ronald</dc:creator>
		<pubDate>Sat, 12 Apr 2008 17:47:42 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/thoughts/choice-experience-authenticity-and-oppression.htm#comment-14349</guid>
		<description>Sean and Claire:  Would you kindly clue me in on the need for acceptance from the disabled community? I don't understand this.</description>
		<content:encoded><![CDATA[<p>Sean and Claire:  Would you kindly clue me in on the need for acceptance from the disabled community? I don&#8217;t understand this.</p>
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		<title>By: Claire</title>
		<link>http://transabled.org/thoughts/sean-thoughts/choice-experience-authenticity-and-oppression.htm#comment-14345</link>
		<dc:creator>Claire</dc:creator>
		<pubDate>Fri, 11 Apr 2008 13:31:46 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/thoughts/choice-experience-authenticity-and-oppression.htm#comment-14345</guid>
		<description>Sorry...not always confined to private communications.  But most of the time, definitely.</description>
		<content:encoded><![CDATA[<p>Sorry&#8230;not always confined to private communications.  But most of the time, definitely.</p>
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		<title>By: Claire</title>
		<link>http://transabled.org/thoughts/sean-thoughts/choice-experience-authenticity-and-oppression.htm#comment-14344</link>
		<dc:creator>Claire</dc:creator>
		<pubDate>Fri, 11 Apr 2008 13:31:07 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/thoughts/choice-experience-authenticity-and-oppression.htm#comment-14344</guid>
		<description>Excellent post and echoes thoughts and feelings I've had for a long time.

I *do* want the acceptance of the disability community, because it's a community that I care very, VERY much about.  I'm even prepared to make some sacrifices in order to make that come about.

But they have pissed me off time and again with their refusal to see a mental disorder as a valid disability.  It angers me that they think that they have a say-so in how *we* deal with *our* own health issues.  "Mental health" does indeed fall under the "health" umbrella...what's so hard to understand about that?  

I've made a generalization there, because I have talked to MANY people with disabilities who are very accepting and supportive. I just wish they would be more publicly supportive.  It seems like this support is always confined to private communications.  They are afraid of angering the disability community at large, I suppose.</description>
		<content:encoded><![CDATA[<p>Excellent post and echoes thoughts and feelings I&#8217;ve had for a long time.</p>
<p>I *do* want the acceptance of the disability community, because it&#8217;s a community that I care very, VERY much about.  I&#8217;m even prepared to make some sacrifices in order to make that come about.</p>
<p>But they have pissed me off time and again with their refusal to see a mental disorder as a valid disability.  It angers me that they think that they have a say-so in how *we* deal with *our* own health issues.  &#8220;Mental health&#8221; does indeed fall under the &#8220;health&#8221; umbrella&#8230;what&#8217;s so hard to understand about that?  </p>
<p>I&#8217;ve made a generalization there, because I have talked to MANY people with disabilities who are very accepting and supportive. I just wish they would be more publicly supportive.  It seems like this support is always confined to private communications.  They are afraid of angering the disability community at large, I suppose.</p>
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