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	<title>Comments on: Pretending vs Wannabe</title>
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	<link>http://transabled.org/thoughts/pretending-vs-wannabe.htm</link>
	<description>Talking about Body Integrity Identity Disorder - Just another disability!</description>
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		<title>By: Nathanael</title>
		<link>http://transabled.org/thoughts/pretending-vs-wannabe.htm/comment-page-1#comment-23126</link>
		<dc:creator>Nathanael</dc:creator>
		<pubDate>Thu, 05 Jan 2012 21:21:10 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/thoughts/pretending-vs-wannabe.htm#comment-23126</guid>
		<description>@mark I am studying to be a clinician</description>
		<content:encoded><![CDATA[<p>@mark I am studying to be a clinician</p>
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		<title>By: Mark</title>
		<link>http://transabled.org/thoughts/pretending-vs-wannabe.htm/comment-page-1#comment-23117</link>
		<dc:creator>Mark</dc:creator>
		<pubDate>Thu, 05 Jan 2012 03:14:25 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/thoughts/pretending-vs-wannabe.htm#comment-23117</guid>
		<description>@Sean &amp; Nathanael:
The same holds true for the ICD-9, a diagnostic classification book used for physical disorders in the U.S. I&#039;ve seen many patients whose ailment just didn&#039;t fit exactly into any category. The codes are also used for insurance billing purposes, so many times I had to write a note to the insurance company along with clinical notes when a patient&#039;s claim was denied. Even if a patient wasn&#039;t diagnostically codified we still treated them, in contrast to what Nathanael has pointed out.

@Nathanael: Is this a hobby or are you studying to be a practitioner? I couldn&#039;t understand the syntax of your post (your language made no sense to me...).</description>
		<content:encoded><![CDATA[<p>@Sean &amp; Nathanael:<br />
The same holds true for the ICD-9, a diagnostic classification book used for physical disorders in the U.S. I&#8217;ve seen many patients whose ailment just didn&#8217;t fit exactly into any category. The codes are also used for insurance billing purposes, so many times I had to write a note to the insurance company along with clinical notes when a patient&#8217;s claim was denied. Even if a patient wasn&#8217;t diagnostically codified we still treated them, in contrast to what Nathanael has pointed out.</p>
<p>@Nathanael: Is this a hobby or are you studying to be a practitioner? I couldn&#8217;t understand the syntax of your post (your language made no sense to me&#8230;).</p>
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		<title>By: Sean</title>
		<link>http://transabled.org/thoughts/pretending-vs-wannabe.htm/comment-page-1#comment-23116</link>
		<dc:creator>Sean</dc:creator>
		<pubDate>Thu, 05 Jan 2012 01:02:06 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/thoughts/pretending-vs-wannabe.htm#comment-23116</guid>
		<description>@Nathanael - if you&#039;re studying psychology, you have learned, or will learn, that it isn&#039;t because a condition isn&#039;t codified that it is not real. In fact, the American Psychiatric Association - &lt;a href=&quot;http://www.psych.org/MainMenu/Research/DSMIV/FAQs/WhatdoesitmeanifadiagnosisisnotincludedintheDSM.aspx&quot; rel=&quot;nofollow&quot;&gt;the authors of the DSM say&lt;/a&gt;:

&lt;blockquote&gt;[If a diagnosis is not included in the DSM, it] means that, as of 1994, there was not sufficient data to justify its inclusion in the Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (DSM-IV). Just because a category is not included in DSM-IV does not necessarily mean that it is not worthy of being a focus of research or treatment.&lt;/blockquote&gt;

And if you don&#039;t think having a diagnosis without a cure is worthy, then you&#039;re ignoring the fact that *knowing* what&#039;s &quot;wrong&quot; with you helps a great deal in healing you.

Perhaps we can&#039;t ready ourselves for &quot;all you go through&quot; - but then, a psychologist cannot really know all their patients go through either. Doesn&#039;t mean they can&#039;t help their patients. Just like someone who is transabled won&#039;t know every aspects of what it&#039;s like to be an amputee, or paraplegic, or blind, or deaf, etc - but that doesn&#039;t mean we&#039;re not &quot;ready&quot;.

I hope they teach you compassion in your psychology school.</description>
		<content:encoded><![CDATA[<p>@Nathanael &#8211; if you&#8217;re studying psychology, you have learned, or will learn, that it isn&#8217;t because a condition isn&#8217;t codified that it is not real. In fact, the American Psychiatric Association &#8211; <a href="http://www.psych.org/MainMenu/Research/DSMIV/FAQs/WhatdoesitmeanifadiagnosisisnotincludedintheDSM.aspx" rel="nofollow">the authors of the DSM say</a>:</p>
<blockquote><p>[If a diagnosis is not included in the DSM, it] means that, as of 1994, there was not sufficient data to justify its inclusion in the Diagnostic and Statistical Manual of Mental Disorders, Fourth Edition (DSM-IV). Just because a category is not included in DSM-IV does not necessarily mean that it is not worthy of being a focus of research or treatment.</p></blockquote>
<p>And if you don&#8217;t think having a diagnosis without a cure is worthy, then you&#8217;re ignoring the fact that *knowing* what&#8217;s &#8220;wrong&#8221; with you helps a great deal in healing you.</p>
<p>Perhaps we can&#8217;t ready ourselves for &#8220;all you go through&#8221; &#8211; but then, a psychologist cannot really know all their patients go through either. Doesn&#8217;t mean they can&#8217;t help their patients. Just like someone who is transabled won&#8217;t know every aspects of what it&#8217;s like to be an amputee, or paraplegic, or blind, or deaf, etc &#8211; but that doesn&#8217;t mean we&#8217;re not &#8220;ready&#8221;.</p>
<p>I hope they teach you compassion in your psychology school.</p>
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		<title>By: Nathanael</title>
		<link>http://transabled.org/thoughts/pretending-vs-wannabe.htm/comment-page-1#comment-23114</link>
		<dc:creator>Nathanael</dc:creator>
		<pubDate>Wed, 04 Jan 2012 16:23:25 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/thoughts/pretending-vs-wannabe.htm#comment-23114</guid>
		<description>Wanna-be, pretender, re-en-actor--it doesn&#039;t matter what you call them--to many in the disabled community like my self. 

The question of &quot;why&quot; will always be there

-- as such  as a studying psychologist I would have to know more about &quot;BID&quot; as it is not a recognized disorder I doubt any shrink worth, his Freudian style couch would diagnose it without a &quot;curative&quot; outlet.--still my curiosity is peaked. &quot;perhaps, is do to, impressional experiences&quot; in childhood?
 while anyone can convince themselves of anything-- I doubt that the &quot;able-bodied&quot; can ready themselves for all we go through</description>
		<content:encoded><![CDATA[<p>Wanna-be, pretender, re-en-actor&#8211;it doesn&#8217;t matter what you call them&#8211;to many in the disabled community like my self. </p>
<p>The question of &#8220;why&#8221; will always be there</p>
<p>&#8211; as such  as a studying psychologist I would have to know more about &#8220;BID&#8221; as it is not a recognized disorder I doubt any shrink worth, his Freudian style couch would diagnose it without a &#8220;curative&#8221; outlet.&#8211;still my curiosity is peaked. &#8220;perhaps, is do to, impressional experiences&#8221; in childhood?<br />
 while anyone can convince themselves of anything&#8211; I doubt that the &#8220;able-bodied&#8221; can ready themselves for all we go through</p>
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		<title>By: Sean</title>
		<link>http://transabled.org/thoughts/pretending-vs-wannabe.htm/comment-page-1#comment-650</link>
		<dc:creator>Sean</dc:creator>
		<pubDate>Sun, 28 Jan 2007 18:43:22 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/thoughts/pretending-vs-wannabe.htm#comment-650</guid>
		<description>Paradox, thank you for your most excellent comments.  I like this analogy to re-enactor, the &quot;hobby pretender&quot;.  Though I must admit, they somewhat disturb me in a way.  Not the fact they use a wheelchair, or cane, or whatever (I live in a glass house afterall!), but the fact that in my experience, in general, they have no desire to have a real (any?) understanding of what it is they are trying to emulate.  Which I think is important, even if you&#039;re only playing tourist in this land of disability, at least if they&#039;re gonna do it in public.

Claire, thank you also for your no less excellent comments.  I particularly like those two points you&#039;ve articulated about why we can&#039;t just blurt out why we really use the chair.  Particularly the fact that it is important to be perceived not only as a wheelchair user because we&#039;re cracked, but rather as paraplegics.</description>
		<content:encoded><![CDATA[<p>Paradox, thank you for your most excellent comments.  I like this analogy to re-enactor, the &#8220;hobby pretender&#8221;.  Though I must admit, they somewhat disturb me in a way.  Not the fact they use a wheelchair, or cane, or whatever (I live in a glass house afterall!), but the fact that in my experience, in general, they have no desire to have a real (any?) understanding of what it is they are trying to emulate.  Which I think is important, even if you&#8217;re only playing tourist in this land of disability, at least if they&#8217;re gonna do it in public.</p>
<p>Claire, thank you also for your no less excellent comments.  I particularly like those two points you&#8217;ve articulated about why we can&#8217;t just blurt out why we really use the chair.  Particularly the fact that it is important to be perceived not only as a wheelchair user because we&#8217;re cracked, but rather as paraplegics.</p>
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		<title>By: Paradox</title>
		<link>http://transabled.org/thoughts/pretending-vs-wannabe.htm/comment-page-1#comment-647</link>
		<dc:creator>Paradox</dc:creator>
		<pubDate>Sun, 28 Jan 2007 15:17:28 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/thoughts/pretending-vs-wannabe.htm#comment-647</guid>
		<description>Excellent post Sean.

I think that whilst all of these phenomonon (Pretending, BIID, Wannabeism etc) can manefest in one person, it it is very dangerous to assume that in every case they are all linked.

I know one or two &quot;pretenders&quot; one is a full timer who lives her life as a paraplegic and may or may not be BiiD. For her it is important that if she cannot be who she feels she should be she can at least be percived as how she feels she should be. She seeks no special attention or benefit, although she may well receive some because of societies tendency to lionise independent disabled people at the same time as it discriminates and despises.

The others however are what you might call &quot;hobby pretenders&quot;. They have much more in common with others I know who are railway  buffs running restored railways, historical re enactors or amateur drama buffs. I think in these people the desire is simply to &quot;be somone else&quot; for a time, to experience another life. the social dilemma for disability pretenders is much like that for some historical re enactors  because the choice of subject challenges a social more. For example it&#039;s seen as odd but harmless fun to pretend to be a cowboy or a redcoat or a civil war soldier. But what if the re enactor prefers to be an SS or Gestapo officer? Society baulks at that.

People like you are not &quot;pretending&quot; to need a wheelchair. The need is a real life psychological one.

I think &quot;Wheelchair user&quot; is a fair and accurate description  in this case. Maybe &quot;Enactor&quot; is a better description of the hobby type.

P</description>
		<content:encoded><![CDATA[<p>Excellent post Sean.</p>
<p>I think that whilst all of these phenomonon (Pretending, BIID, Wannabeism etc) can manefest in one person, it it is very dangerous to assume that in every case they are all linked.</p>
<p>I know one or two &#8220;pretenders&#8221; one is a full timer who lives her life as a paraplegic and may or may not be BiiD. For her it is important that if she cannot be who she feels she should be she can at least be percived as how she feels she should be. She seeks no special attention or benefit, although she may well receive some because of societies tendency to lionise independent disabled people at the same time as it discriminates and despises.</p>
<p>The others however are what you might call &#8220;hobby pretenders&#8221;. They have much more in common with others I know who are railway  buffs running restored railways, historical re enactors or amateur drama buffs. I think in these people the desire is simply to &#8220;be somone else&#8221; for a time, to experience another life. the social dilemma for disability pretenders is much like that for some historical re enactors  because the choice of subject challenges a social more. For example it&#8217;s seen as odd but harmless fun to pretend to be a cowboy or a redcoat or a civil war soldier. But what if the re enactor prefers to be an SS or Gestapo officer? Society baulks at that.</p>
<p>People like you are not &#8220;pretending&#8221; to need a wheelchair. The need is a real life psychological one.</p>
<p>I think &#8220;Wheelchair user&#8221; is a fair and accurate description  in this case. Maybe &#8220;Enactor&#8221; is a better description of the hobby type.</p>
<p>P</p>
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		<title>By: Claire</title>
		<link>http://transabled.org/thoughts/pretending-vs-wannabe.htm/comment-page-1#comment-644</link>
		<dc:creator>Claire</dc:creator>
		<pubDate>Sun, 28 Jan 2007 13:36:10 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/thoughts/pretending-vs-wannabe.htm#comment-644</guid>
		<description>Excellent post, Sean.  Actually, I don&#039;t like the terms Pretender or Wannabe.  They carry negative connotations, and imply deceit, choice, and even frivolousness.  Both terms fall far short of the reality of the illness called BIID.  

The reality is this.  We &quot;wannabe&quot; because of a mental illness in which our mind tells us that our body is other than what it is.  We &quot;pretend&quot; as a form of psychological therapy in order to manage these feelings, because there is no cure.  Our psychological need for a chair is not less real than someone&#039;s physical need for a chair (or cane, or crutches, or contact lenses, or whatever you use to simulate your desired disability in order to manage your feelings).  

And why can&#039;t we just be open and honest and tell everyone &quot;I use a chair because I have BIID&quot;?  Two reasons.  

1.  If BIID tells us that we are a paraplegic, then being perceived as being who we are is part of the therapy.  Take that away, and the therapy becomes less effective. (And for those who will cry &quot;Attention!&quot; take note of the difference.  It&#039;s not about attention, it&#039;s about being perceived as who our brain tells us we are.  There is a HUGE difference there.)

2.  The world isn&#039;t ready for BIID.  They haven&#039;t been inculcated by the media to know, understand, and accept BIID.  They are revolted and alarmed by it.  The last thing anyone dealing with BIID needs is for family members, friends and acquaintances to start looking at you askance, avoiding you, whispering things behind your back, or thinking that you are insane in other ways besides the BIID (ie. &quot;are you going to try to injure our children?&quot;).  

And so we must deceive, for our own mental health.  And for those of the Judeo-Christian persuasion, I am quite convinced that where deception causes no harm to others, it is permissable as a way to manage an illness.  The good caused by the therapy far outweighs the harm caused by the deception.</description>
		<content:encoded><![CDATA[<p>Excellent post, Sean.  Actually, I don&#8217;t like the terms Pretender or Wannabe.  They carry negative connotations, and imply deceit, choice, and even frivolousness.  Both terms fall far short of the reality of the illness called BIID.  </p>
<p>The reality is this.  We &#8220;wannabe&#8221; because of a mental illness in which our mind tells us that our body is other than what it is.  We &#8220;pretend&#8221; as a form of psychological therapy in order to manage these feelings, because there is no cure.  Our psychological need for a chair is not less real than someone&#8217;s physical need for a chair (or cane, or crutches, or contact lenses, or whatever you use to simulate your desired disability in order to manage your feelings).  </p>
<p>And why can&#8217;t we just be open and honest and tell everyone &#8220;I use a chair because I have BIID&#8221;?  Two reasons.  </p>
<p>1.  If BIID tells us that we are a paraplegic, then being perceived as being who we are is part of the therapy.  Take that away, and the therapy becomes less effective. (And for those who will cry &#8220;Attention!&#8221; take note of the difference.  It&#8217;s not about attention, it&#8217;s about being perceived as who our brain tells us we are.  There is a HUGE difference there.)</p>
<p>2.  The world isn&#8217;t ready for BIID.  They haven&#8217;t been inculcated by the media to know, understand, and accept BIID.  They are revolted and alarmed by it.  The last thing anyone dealing with BIID needs is for family members, friends and acquaintances to start looking at you askance, avoiding you, whispering things behind your back, or thinking that you are insane in other ways besides the BIID (ie. &#8220;are you going to try to injure our children?&#8221;).  </p>
<p>And so we must deceive, for our own mental health.  And for those of the Judeo-Christian persuasion, I am quite convinced that where deception causes no harm to others, it is permissable as a way to manage an illness.  The good caused by the therapy far outweighs the harm caused by the deception.</p>
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