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Devil’s Advocate (2)

Written by Zoe on Tuesday, November 11, 2008

So, if I’m going to be unpopular then I might as well ask the difficult questions floating around in my head now, and hopefully try and redeem myself later on.

Here goes: Why, if we are so convinced that wheeling is the only treatment option available, anda second rate one at that, why dont we just take that final step, why dont we just do it – make it for real?

I dont know the answer to the question – which is why I’m asking, but there are ways, we all know there are ways (which i’m certainly not going to attempt to publish here). And i’m certainly not encouraging it either – because I have absolutely no basis on which to do so. But, I still want to know, why is it that we can sit around and talk about it till the sun goes down, but never actually take the final step which would seal our fate?

Is it that we aren’t really sure that’s the only answer? Is it that we arent really sure it will fulfill all our desires? Is it that we are scared (heck, I know I am). Is it that we need the acknowledgement and assistance of the medical profession? Is it that there are too many uncertainties – to many things that could go wrong which would result in us acheiving a completely different outcome than the one we perceive?

What is it that stops us from taking the final plunge? From doing the thing we know will make us whole?

Okay, that’s it – no more playing devil’s advocate for me – next post will be positive – I promise!

 

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5 Comments

1 On 11 November, 2008, Beth said:

Avatar random

For me there are far too many things that could go wrong. I could just as likely end up tetraplegic or with a brain injury or dead as with paraplegia.

Also, I couldn’t do it to my husband, I love him and I know that he loves me. I know that he’d stand by me if a genuine incident occured but I’m not going to put him through it on purpose.

I’m at a fairly early point in all this though, I’ve been aware of these feelings since I was 12 (well that’s the first time I wrote about it in my diary but I know I was feeling BIID before that.) I’ve owned a wheelchair (nice bromakin one) for 4 years. So far it’s been enough to know I can sit in it in the house whenever I want, to wheel in the house and 4 times outside (spread over 3 years). I can feel it getting stronger but I’m trying to slow it’s progress as much as possible by not wheeling any more than I really feel I need to.

 

2 On 12 November, 2008, Sean said:

Avatar for Sean

What stops me is simple: There is no “safe” and “guaranteed” way to get what I need, paraplegia at L1/L2. It is the only thing stopping me. Were there a way that I could be sure do get the paralysis I need without doing more extensive damage, or doing damage without paralysis, I’d do it.

In a way, those of us needing an amputation are in better place than we are, it’s relatively simple (albeit not easy) to get a limb off.

 

3 On 13 November, 2008, Claire said:

Avatar for Claire

That’s exactly it. I don’t think you can say “we all know there are ways”. We don’t know any ways that will do what we want without risking a whole lot more than we bargained for.

I tried something once, it was a disaster. I have a partially paralyzed foot and nerve pain that nearly drove me insane until I finally went and came clean to my GP who put me on pain medication.

 

4 On 14 November, 2008, Chloe said:

Avatar for Chloe

Zoe, you are not the slightest bit unpopular! Difficult questions stimulate interesting discussion.

It has taken me a LONG time to get to my current psychological state. I have every intention of making myself paraplegic through skiing this season. Most likely it’s not going to happen, but I am going to try. It will involve very aggressive skiing on very challenging terrain. It will be the kind of skiing wherein sometimes people die. I have discussed this with my partner. I will indeed refrain from doing things that seem more likely to result in death than paraplegia. My partner would be devastated by my death. But she knows that I am going to put myself in danger; she understands why. BIID is relentlessly driving me out of my mind. Perhaps I am being very selfish, but I HAVE to do this. My first ski day of the season is tomorrow.

Zoe, yes I am scared.

 

5 On 19 November, 2008, Zoe said:

Avatar random

Thanks guys for your replies, and for confirming what i thought was going to be the answer.

Yes, there might be many things we can do that will get us close to our goal, but nothing that will guarantee that the end result will be what we hope it will be.

So yes, i might do something that might, if the outcome was a given, bring me closer to where i want to be, but it equally might bring me so far off from where i need to be, and in a position where there is no coming back from.

So yes, in answer to my own question, there are just too many unknowns.

Chloe, whilst i hope u acheive the outcome you desire, i hope that you do not take unnecessary risks in order to get to the end goal. Please try to be safe.

Luv,
Z

 

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