Comments on: Do I Want To Get Cured? http://transabled.org/thoughts/other-thoughts/toms-thoughts/do-i-want-to-get-cured.htm Talking about Body Integrity Identity Disorder - Just another disability! Fri, 30 Jul 2010 12:16:40 +0000 http://wordpress.org/?v=2.7-beta2 hourly 1 By: Sean http://transabled.org/thoughts/other-thoughts/toms-thoughts/do-i-want-to-get-cured.htm/comment-page-1#comment-16785 Sean Mon, 29 Dec 2008 22:15:00 +0000 http://transabled.org/?p=1309#comment-16785 I fixed it :) I fixed it :)

]]> By: Tom http://transabled.org/thoughts/other-thoughts/toms-thoughts/do-i-want-to-get-cured.htm/comment-page-1#comment-16778 Tom Mon, 29 Dec 2008 11:54:23 +0000 http://transabled.org/?p=1309#comment-16778 Sean, Thank you, but the link doesn't work! Try again :) Sean, Thank you, but the link doesn’t work!

Try again :)

]]> By: Sean http://transabled.org/thoughts/other-thoughts/toms-thoughts/do-i-want-to-get-cured.htm/comment-page-1#comment-16776 Sean Mon, 29 Dec 2008 10:13:48 +0000 http://transabled.org/?p=1309#comment-16776 Tom, you can see references to those studies here: <a href="http://biid-info.org/Medical_and_societal_bias_against_disabilities" rel="nofollow">medical bias against disabilities</a> (or not actually link if the system eats the link: http://biid-info.org/Medical_and_societal_bias_against_disabilities ) Tom, you can see references to those studies here:
medical bias against disabilities (or not actually link if the system eats the link: http://biid-info.org/Medical_and_societal_bias_against_disabilities )

]]> By: Tom http://transabled.org/thoughts/other-thoughts/toms-thoughts/do-i-want-to-get-cured.htm/comment-page-1#comment-16775 Tom Mon, 29 Dec 2008 06:44:27 +0000 http://transabled.org/?p=1309#comment-16775 Which parameters did those studies take into account to assess quality of life? Was that mentionned? I'd be interested to know. Can you give us some pointers, Sean? Which parameters did those studies take into account to assess quality of life? Was that mentionned? I’d be interested to know. Can you give us some pointers, Sean?

]]> By: Sean http://transabled.org/thoughts/other-thoughts/toms-thoughts/do-i-want-to-get-cured.htm/comment-page-1#comment-16726 Sean Sun, 28 Dec 2008 21:34:04 +0000 http://transabled.org/?p=1309#comment-16726 I think the idea of normalisation is an important one here. I encountered that myself not long ago. The shrink wanted to normalise me, according to his own bias, rather than work with me/for me towards appeasing the anguish. Normalisation is not the answer. As for people with disabilities being happy after their injury... Studies show that approximately 80% of people with spinal cord injuries, 5 years post injury, say their quality of life is equal to, or better than before injury... I think the idea of normalisation is an important one here. I encountered that myself not long ago. The shrink wanted to normalise me, according to his own bias, rather than work with me/for me towards appeasing the anguish. Normalisation is not the answer.

As for people with disabilities being happy after their injury… Studies show that approximately 80% of people with spinal cord injuries, 5 years post injury, say their quality of life is equal to, or better than before injury…

]]> By: Cath http://transabled.org/thoughts/other-thoughts/toms-thoughts/do-i-want-to-get-cured.htm/comment-page-1#comment-16724 Cath Sun, 28 Dec 2008 17:53:23 +0000 http://transabled.org/?p=1309#comment-16724 For me the cure is nothing less than surgery. Until then I will still have BIID. I await the start of my own therapy to see whether my therapist falls into the same trap as yours, Tom. I somehow suspect he will, however well meaning he may be. I can accept that my need is irrational. It defies logic. But many, many things in life do just that and society does not abhore them. Chloe's example being a case in point. We do not encourage people to behave recklessly because of the risk of accident, yet we admire those who race cars professionally, climb precipices, junp out of aircraft and so on. That defies logic too. For me the cure is nothing less than surgery. Until then I will still have BIID. I await the start of my own therapy to see whether my therapist falls into the same trap as yours, Tom. I somehow suspect he will, however well meaning he may be.

I can accept that my need is irrational. It defies logic. But many, many things in life do just that and society does not abhore them. Chloe’s example being a case in point. We do not encourage people to behave recklessly because of the risk of accident, yet we admire those who race cars professionally, climb precipices, junp out of aircraft and so on. That defies logic too.

]]> By: Chloe http://transabled.org/thoughts/other-thoughts/toms-thoughts/do-i-want-to-get-cured.htm/comment-page-1#comment-16721 Chloe Sun, 28 Dec 2008 16:58:02 +0000 http://transabled.org/?p=1309#comment-16721 The idea of being cured is rather confusing to me. It is something I have not really been able to bend my mind around. What would it mean? There are so many memories that have the imprint of my BIID. How do I relate to those memories if I no longer have BIID? I believe that my character has been significantly influenced by BIID. I think I am a more compassionate and understanding person because of it. Do I lose that compassion if I am cured of BIID? How would it affect my relationships with PWDs? I am scared that a cure might turn out to be a psychological disaster for me. Paraplegia seems much less scary. That's a good point about dangerous sports. How come it is okay for me to ski in a manner which puts me at risk, yet it is not okay for me to have a spinal cord transection? It is also interesting about that religious sect in India. I am very far from being a bible scholar. However, my partner is, so I asked her about something. She brought my attention to this: "And if thy right hand offend thee, cut it off, and cast it from thee: for it is profitable for thee that one of thy members should perish..." (Matthew 5:30). The idea of being cured is rather confusing to me. It is something I have not really been able to bend my mind around. What would it mean? There are so many memories that have the imprint of my BIID. How do I relate to those memories if I no longer have BIID? I believe that my character has been significantly influenced by BIID. I think I am a more compassionate and understanding person because of it. Do I lose that compassion if I am cured of BIID? How would it affect my relationships with PWDs? I am scared that a cure might turn out to be a psychological disaster for me. Paraplegia seems much less scary.

That’s a good point about dangerous sports. How come it is okay for me to ski in a manner which puts me at risk, yet it is not okay for me to have a spinal cord transection?

It is also interesting about that religious sect in India. I am very far from being a bible scholar. However, my partner is, so I asked her about something. She brought my attention to this: “And if thy right hand offend thee, cut it off, and cast it from thee: for it is profitable for thee that one of thy members should perish…” (Matthew 5:30).

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