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No Going Back

Written by Sylvie on Sunday, March 7, 2010

When I put on the AFOs, when I tried my first tentative steps in them, I realized there was no going back. I don’t want to go back. This feels like I’m slowly uncovering more and more parts of my true self, the certain true part of me.

This is only one aspect, of course, but this may be one of the most important parts of my life, too long held back.

It seems almost miraculous. Within three months, I have a wheelchair and now a set of AFOs. Sort of like, when the student is ready, the teacher will appear.

What I know now is that I do want a KAFO for my left leg and an AFO for my right, professionally made to fit me.

And after I sat in my chair, in my AFOs, I knew that if surgery was an affordable and legal option, I would go for it. It surprised me to know that. I allow that I may not always feel that way, but this is what’s with me now.

 

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2 Comments

1 On 8 March, 2010, Chloe said:

Avatar for Chloe

Wow, Sylvie! That sounds just like me too! I’ve been wearing a left KAFO all day almost every day for almost a year. It totally feels like a part of me that I can’t do without; no going back; a half century old dream come true.

I wear bilateral KAFOs about three days per month. There something about it that feels a little off, because it does not reflect the asymmetry of my BIID. I believe a left KAFO and a right AFO would be perfect. The latter is on my shopping list.

My recollection is that Peter is in the same club:- left KAFO, right AFO, wheelchair, and ready for surgery. It wasn’t so many years ago that I imagined I would never find someone like me. I am astonished that you exist, Sylvie!

 

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