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It’s the Little Things That Matter!

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Written by Sophie on Saturday, September 27, 2008

I’ve been feeling a little depressed lately and all I can say is that I’m thankful it isn’t over BIID.  No, at the moment I’m feeling depressed over Coeliac Disease.  Most people don’t realise the full implications of being a coeliac because as far as they can tell it simply means I can’t eat gluten.  In reality the last time I accidentally ate something I wasn’t meant to I was stuck in a puddle of my own…”bodily fluids” (all varieties, sorry if it grosses you out) vomiting and crying.  I try to avoid that situation as much as possible.

I don’t know what things are like in other countries but in New Zealand you can’t buy cheap, easy, no fuss foods like pies, pizzas, sausage rolls in the supermarket that’s gluten free.  And I live with two brothers who pull pies and pizzas out of the freezer and microwave at will.  The smell is torture and that isn’t even the worst of it.  Sometimes we go to the fish and chip shop for tea to make things easier on our parents, all I have to choose from is chips (anything else I can eat is too expensive).  Last time we went my brothers both ordered fish and hotdogs to go with their chips…and then my flippen younger brother tried to give my tea away to mum and dad simply because it’s “just chips”.  I’m tired of feeling left out.  I’m tired of having to settle for the leftovers that I can eat.  I’m tired of picking up pizzas for the family (my younger brother can’t drive) and having my car stink of hot pizza.  I’ll get over this.  It comes in waves just like my BIID does, and just like my BIID it never really goes away :(

 

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12 Comments

1 On 27 September, 2008, Claire said:

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That really sucks. :o( Here in Canada, in the pharmacy there is a whole aisle of gluten-free foods (cereal, bread, cookies/biscuits), along with a freezer that has stuff like frozen pizzas, pies, fresh pasta, and things of that nature. Also tons of sugar-free stuff for diabetics.

On the other hand, eating cheap easy no fuss foods is the surest way to gain weight (trust me, I know!) None of those “gluten free” foods appears to be terribly healthy, overall. It’s all pizza, cookies, pasta, etc. I have a cousin who has Coeliac Disease and she said that the whole family started eating healthier once she had to prepare more fresh vegetables and meats and eat less processed carbohydrates, and spend more time cooking real food. She and her husband both lost weight and the kids are learning to eat much more appropriately. Look at it as an opportunity to take good care of yourself. :o)

 

2 On 27 September, 2008, Sophie said:

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as a family we tend to have a lot of mashed potatoes, frozen mixed veges and sausages during the week and we get that much because Dad works and wants a “proper meal”.

Money dictates a lot of what we eat in our house so variety doesn’t come without a lot of moaning, groaning and effort.

 

3 On 27 September, 2008, Gordo said:

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I’ve never heard of people eating hot dogs with chips. I normally buy them in bags at grocery stores. (I know they’re not good for me, but still… chips rock. Especially BBQ flavour.)

I can relate in a way… I’m allergic to certain dairy products (but not totally lactose intolerent), so there are certain types of pizza I can’t eat (which sucks because I love pizza)… :-\

 

4 On 27 September, 2008, Chloe said:

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I’m sorry Sophie; that sounds awful. I’m lucky to have a stomach that can handle absolutely anything; no allergies at all.

However, I do know what it’s like to start vomiting after accidentally eating something. In my case it is completely psychological, stemming from childhood stuff. Raisins are the most common culprit. I have been in the situation of having to explain, after being invited to dinner, that I was vomiting not because the food was bad or that I had a physical problem, but because I have a psychological issue. People probably thought I was weird. Hmm, this reminds me of something ;-)

 

5 On 27 September, 2008, Ronald said:

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Gordo;

I think in some parts of the world, “chips” is the equivelant of North American Frech fries.

 

6 On 27 September, 2008, Gordo said:

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Ohhhhhh, okay. Now “chips” makes sense now.

 

7 On 27 September, 2008, Sean said:

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Completely off topic, but I vividly remember the time I vacationned in Australia from Canada. I was looking after a couple of a friend’s kids. I asked them “do you want ketchup on your fries?” and they looked me as if I was speaking chinese. I tried “do you want tomato sauce on your chips?” and they bounced up and down saying yes…

Wasn’t it Churchill that said “England and America, two countries separated by the same language”?? :D

 

8 On 27 September, 2008, Sophie said:

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Yep I meant chips as in fries. In NZ fries are chips and chips are chippies.

We used to have an American couple live down the road from us once. We went and visited one afternoon and they asked us to stay for Dinner. They then asked me “Do you want me to make you breakfast?” By then I was very confused thinking “I thought we were staying for Tea”, turned out they were talking about cooking bacan, eggs and chips (with ketchup) for tea!

 

9 On 27 September, 2008, Brice said:

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No one seems to know where the “two nations divided by a common language” saying comes from. It does not appear in Bartlett’s.

 

10 On 27 September, 2008, Tora said:

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Tat sucks… My mom can’t eat gluten either… Or raw fruits and veggies… But it’s because of issues in her intestines. I gag when I eat some veggies (broccoli in particular) not because of any issues… But because I’m a REALLY picky eater. Unfortunately, I can’t really afford to be picky since I’m lactose intolerant…. And slightly allergic to milk (but I can take a pill for it, so I still get to eat school lunches. Whoopee.)
Kinda ironic, really. I grew up allergic to soy (had an asthma attack whenever I ate it) so I always had regular milk… And now I only drink soy milk… O_o

 

11 On 27 September, 2008, Tora said:

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…I meant to say ‘That sucks’

 

12 On 28 September, 2008, Jen said:

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Re: the quote. According to my digging around, it can be credited to Sir Walter Besant (who?) and George Bernard Shaw.

Re: the diet. Can you begin petitioning whoever does the shopping to include one new thing a week? Like salad? And if it’s bought, make sure you eat it, so you can continue to make inroads.

In the meantime - start looking for a place of your own, even if it’s the NZ equivalent of a bedsit. You’ll never get the support you need from your fam. Sorry but I think they’ve proven it.

 

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About Sophie

Sophie is transabled. She has been using a wheelchair more and more, and has wheeled "full time" for several months. She is now stuck back at her parents house without a wheelchair and having to suppress her transabledness. She looks forward to the day where she will be a para (Complete T12).