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	<title>Comments on: New Shoes</title>
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	<link>http://transabled.org/thoughts/other-thoughts/chloes-thoughts/new-shoes.htm</link>
	<description>Talking about Body Integrity Identity Disorder - Just another disability!</description>
	<pubDate>Fri, 30 Jul 2010 12:01:08 +0000</pubDate>
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		<title>By: Chloe</title>
		<link>http://transabled.org/thoughts/other-thoughts/chloes-thoughts/new-shoes.htm/comment-page-1#comment-17961</link>
		<dc:creator>Chloe</dc:creator>
		<pubDate>Tue, 28 Apr 2009 03:51:48 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/?p=2230#comment-17961</guid>
		<description>@Nobody. I'm very bad at figuring out what people's hidden motivations might be. I take what people say at face value. I think the orthotist might have assumed that I already had the parts to make the ankles fixed or semi-rigid. I'm not sure why though, because I had been explicit about not having any paresis below the knees. He seemed genuinely convinced that I have sufficient paresis affecting the left ankle to warrant it being semi-rigid at least, though certainly not complete paralysis.

Another factor could be that it is more usual to have just the lower leg affected than just the upper leg; hence the utility of an AFO. So perhaps the orthotist was not used to a lower leg being fine when there is paresis in the upper leg. Well, usual or not that's the way things really are with my left leg. I want to keep things as close to reality as possible so I don't have to tell outright lies to people.

I told the orthotist that I had been able to get around okay with free ankles on the KAFOs. The upshot is that's the way they still are and I'm fine with that.</description>
		<content:encoded><![CDATA[<p>@Nobody. I&#8217;m very bad at figuring out what people&#8217;s hidden motivations might be. I take what people say at face value. I think the orthotist might have assumed that I already had the parts to make the ankles fixed or semi-rigid. I&#8217;m not sure why though, because I had been explicit about not having any paresis below the knees. He seemed genuinely convinced that I have sufficient paresis affecting the left ankle to warrant it being semi-rigid at least, though certainly not complete paralysis.</p>
<p>Another factor could be that it is more usual to have just the lower leg affected than just the upper leg; hence the utility of an AFO. So perhaps the orthotist was not used to a lower leg being fine when there is paresis in the upper leg. Well, usual or not that&#8217;s the way things really are with my left leg. I want to keep things as close to reality as possible so I don&#8217;t have to tell outright lies to people.</p>
<p>I told the orthotist that I had been able to get around okay with free ankles on the KAFOs. The upshot is that&#8217;s the way they still are and I&#8217;m fine with that.</p>
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		<title>By: Nobody</title>
		<link>http://transabled.org/thoughts/other-thoughts/chloes-thoughts/new-shoes.htm/comment-page-1#comment-17960</link>
		<dc:creator>Nobody</dc:creator>
		<pubDate>Tue, 28 Apr 2009 02:43:51 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/?p=2230#comment-17960</guid>
		<description>So, regarding the ankles, the guy at first said you would need fixed or semi-rigid, and then actually delivered free ankles, is that right? He "didn't have the parts" and they "would cost extra" ... something about this sets off subtle alarm bells. 

Within the context of orthotics and disability, the "normal" mindset is to want less paralysis and bracing. It occurs to me that the profession has ways of dealing with "people like us", which could include measuring how far from normal the mindset a client is, in the context of wanting or accepting more bracing than is physically necessary.

In my experience with guys who accepted my business without a prescription, one was nonchalant up to a point but was firm and clear about not crossing a line, and I respected that. The other guy was clearly uncomfortable with the whole idea, and actually tried to lecture me. He obviously did not understand our side, but he did understand his business enough to charge me more than we had agreed on. No respect for him, except for the workmanship on the "introductory" item.</description>
		<content:encoded><![CDATA[<p>So, regarding the ankles, the guy at first said you would need fixed or semi-rigid, and then actually delivered free ankles, is that right? He &#8220;didn&#8217;t have the parts&#8221; and they &#8220;would cost extra&#8221; &#8230; something about this sets off subtle alarm bells. </p>
<p>Within the context of orthotics and disability, the &#8220;normal&#8221; mindset is to want less paralysis and bracing. It occurs to me that the profession has ways of dealing with &#8220;people like us&#8221;, which could include measuring how far from normal the mindset a client is, in the context of wanting or accepting more bracing than is physically necessary.</p>
<p>In my experience with guys who accepted my business without a prescription, one was nonchalant up to a point but was firm and clear about not crossing a line, and I respected that. The other guy was clearly uncomfortable with the whole idea, and actually tried to lecture me. He obviously did not understand our side, but he did understand his business enough to charge me more than we had agreed on. No respect for him, except for the workmanship on the &#8220;introductory&#8221; item.</p>
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		<title>By: Chloe</title>
		<link>http://transabled.org/thoughts/other-thoughts/chloes-thoughts/new-shoes.htm/comment-page-1#comment-17950</link>
		<dc:creator>Chloe</dc:creator>
		<pubDate>Sun, 26 Apr 2009 15:36:04 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/?p=2230#comment-17950</guid>
		<description>Lane, I am absolutely dying to read all about your experiences with leg braces, injury, wheelchairs, and everything else :)</description>
		<content:encoded><![CDATA[<p>Lane, I am absolutely dying to read all about your experiences with leg braces, injury, wheelchairs, and everything else :)</p>
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		<title>By: Lane</title>
		<link>http://transabled.org/thoughts/other-thoughts/chloes-thoughts/new-shoes.htm/comment-page-1#comment-17949</link>
		<dc:creator>Lane</dc:creator>
		<pubDate>Sun, 26 Apr 2009 07:42:37 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/?p=2230#comment-17949</guid>
		<description>Chloe, I'm glad things went well.  You just keep giving me ideas on what to write about.  My orthotist visits were interesting. One thought, though - after my injury, I had thermoplastic KAFOs and AFOs (oops, I'm giving stuff away) and they were terrible.  I'll tell you about some alternatives if I can EVER get time together to put pen to paper...well, you know what I mean!</description>
		<content:encoded><![CDATA[<p>Chloe, I&#8217;m glad things went well.  You just keep giving me ideas on what to write about.  My orthotist visits were interesting. One thought, though - after my injury, I had thermoplastic KAFOs and AFOs (oops, I&#8217;m giving stuff away) and they were terrible.  I&#8217;ll tell you about some alternatives if I can EVER get time together to put pen to paper&#8230;well, you know what I mean!</p>
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		<title>By: Sean</title>
		<link>http://transabled.org/thoughts/other-thoughts/chloes-thoughts/new-shoes.htm/comment-page-1#comment-17948</link>
		<dc:creator>Sean</dc:creator>
		<pubDate>Sun, 26 Apr 2009 03:41:18 +0000</pubDate>
		<guid isPermaLink="false">http://transabled.org/?p=2230#comment-17948</guid>
		<description>I'm very happy things went well for you with the orthotist.  These guys (and gals) are generally quite nice and helpful :) As I keep telling Claire and Sasha ;)</description>
		<content:encoded><![CDATA[<p>I&#8217;m very happy things went well for you with the orthotist.  These guys (and gals) are generally quite nice and helpful :) As I keep telling Claire and Sasha ;)</p>
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