Comments on: New BIID Study http://transabled.org/thoughts/new-biid-study.htm Talking about Body Integrity Identity Disorder - Just another disability! Sat, 11 Feb 2012 05:18:49 +0000 hourly 1 http://wordpress.org/?v=3.1.1 By: John http://transabled.org/thoughts/new-biid-study.htm/comment-page-1#comment-12405 John Fri, 14 Dec 2007 07:15:00 +0000 http://transabled.org/thoughts/new-biid-study.htm#comment-12405 I have also participated in the study by Dr. First. In my case, it was a 2 hr phone interview that was very detailed, very thoughtful, and very professional. I want to urge as many BIID/transabled who need to be paraplegics, deaf, or other non-amputee disabilities to participate. Dr. First hopes to enroll around 50 or so (equal to the number in the amputee study), that way he can compare the different groups. The study is confidential and he is going to listen and ask questions and is not there to pass judgment. Please, if you haven't contacted Dr. First, do so (the email address is listed in Sean's post). What Sean, Claire, and Ahiru have said is true, there is nothing to fear and this is the way towards some understanding and acceptance of us. I have also participated in the study by Dr. First. In my case, it was a 2 hr phone interview that was very detailed, very thoughtful, and very professional. I want to urge as many BIID/transabled who need to be paraplegics, deaf, or other non-amputee disabilities to participate. Dr. First hopes to enroll around 50 or so (equal to the number in the amputee study), that way he can compare the different groups. The study is confidential and he is going to listen and ask questions and is not there to pass judgment. Please, if you haven’t contacted Dr. First, do so (the email address is listed in Sean’s post). What Sean, Claire, and Ahiru have said is true, there is nothing to fear and this is the way towards some understanding and acceptance of us.

]]> By: Claire http://transabled.org/thoughts/new-biid-study.htm/comment-page-1#comment-12330 Claire Tue, 11 Dec 2007 22:42:31 +0000 http://transabled.org/thoughts/new-biid-study.htm#comment-12330 I participated in the study two weeks ago. I found it to be very non-threatening. Dr. First is a very personable guy and quite easy to talk to. He didn't ask any personal questions such as my real name, and assured me of my total confidentiality. He also said that at any time we could refuse to answer any question. It did take two hours, but I found that it went by quickly. Many of the questions were very thought-provoking and when I was done I felt that I had learned something about myself and my BIID. Dr. First also gave me some great free advice! If you haven't emailed him yet, DO SO. I participated in the study two weeks ago. I found it to be very non-threatening. Dr. First is a very personable guy and quite easy to talk to. He didn’t ask any personal questions such as my real name, and assured me of my total confidentiality. He also said that at any time we could refuse to answer any question. It did take two hours, but I found that it went by quickly. Many of the questions were very thought-provoking and when I was done I felt that I had learned something about myself and my BIID. Dr. First also gave me some great free advice! If you haven’t emailed him yet, DO SO.

]]> By: Ahiru http://transabled.org/thoughts/new-biid-study.htm/comment-page-1#comment-12304 Ahiru Tue, 11 Dec 2007 00:56:11 +0000 http://transabled.org/thoughts/new-biid-study.htm#comment-12304 I did my interview with him this morning. The interview took two hours and boy did my arm hurt at the end of it. Most of it was alright, it forced me to try and articulate my thoughts verbally a little better, that was hard. It also forced me to recall some painful memories but I can say it is well worth it. I would recommend any other transabled people stepping out and doing an interview. I did my interview with him this morning. The interview took two hours and boy did my arm hurt at the end of it. Most of it was alright, it forced me to try and articulate my thoughts verbally a little better, that was hard. It also forced me to recall some painful memories but I can say it is well worth it. I would recommend any other transabled people stepping out and doing an interview.

]]> By: Jen http://transabled.org/thoughts/new-biid-study.htm/comment-page-1#comment-12052 Jen Thu, 29 Nov 2007 11:18:53 +0000 http://transabled.org/thoughts/new-biid-study.htm#comment-12052 Haven't heard from him, either, but my situation may not be as desireable for the study. Haven’t heard from him, either, but my situation may not be as desireable for the study.

]]> By: Marie http://transabled.org/thoughts/new-biid-study.htm/comment-page-1#comment-12036 Marie Thu, 29 Nov 2007 01:27:43 +0000 http://transabled.org/thoughts/new-biid-study.htm#comment-12036 I heard from him some weeks ago, currently waiting to see if he can get approval from his board to conduct interviews over IM/email. Phones don't work so well for me. ;) I heard from him some weeks ago, currently waiting to see if he can get approval from his board to conduct interviews over IM/email. Phones don’t work so well for me. ;)

]]> By: Sean http://transabled.org/thoughts/new-biid-study.htm/comment-page-1#comment-12032 Sean Wed, 28 Nov 2007 22:50:28 +0000 http://transabled.org/thoughts/new-biid-study.htm#comment-12032 Dr. First has been away from his office out of town for a bit more than a week, which explains the lack of responses. He's now back (I understand he's done an interview with Claire yesterday), and should get back to you soon. Dr. First has been away from his office out of town for a bit more than a week, which explains the lack of responses.

He’s now back (I understand he’s done an interview with Claire yesterday), and should get back to you soon.

]]> By: Brice http://transabled.org/thoughts/new-biid-study.htm/comment-page-1#comment-12031 Brice Wed, 28 Nov 2007 22:43:59 +0000 http://transabled.org/thoughts/new-biid-study.htm#comment-12031 Yes, no response here either. Seems there ought to be at least an acknowledgement that he received it. Yes, no response here either. Seems there ought to be at least an acknowledgement that he received it.

]]> By: Ronald http://transabled.org/thoughts/new-biid-study.htm/comment-page-1#comment-12029 Ronald Wed, 28 Nov 2007 22:36:04 +0000 http://transabled.org/thoughts/new-biid-study.htm#comment-12029 I responded by email over 1 week ago, there has not been any follow up. Has anybody else tried? I responded by email over 1 week ago, there has not been any follow up. Has anybody else tried?

]]> By: Sean http://transabled.org/thoughts/new-biid-study.htm/comment-page-1#comment-11852 Sean Thu, 22 Nov 2007 20:26:02 +0000 http://transabled.org/thoughts/new-biid-study.htm#comment-11852 The second paragraph on this blog is the official entry for the research. The second paragraph on this blog is the official entry for the research.

]]> By: Silent Reader http://transabled.org/thoughts/new-biid-study.htm/comment-page-1#comment-11849 Silent Reader Thu, 22 Nov 2007 16:09:17 +0000 http://transabled.org/thoughts/new-biid-study.htm#comment-11849 So what? Where are the official information from the Columbia University? Thank´s Kai So what? Where are the official information from the Columbia University?
Thank´s
Kai

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