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It’s the Little Things That Matter
Written by Sophie on Thursday, August 3, 2006
Those of you who are like me will know what I am talking about. You try to spend as much of your time as you can ensuring that your "pretending" doesn’t impact negatively on the disabled community. None of this matters when you take part in discussions like the one on the CareCure forum.
They whine and ask questions and then blow their stack when someone turns up to try and answer their questions. Their biggest argument would be that at the end of the day we could get up out of our wheelchairs if we really wanted to. That we don’t know what it’s like to be utterly helpless when something goes wrong. I have decided that discussions in forums like these are just black holes that will suck you in, they should be avoided simply because the members don’t want an answer.
How dare they assume we don’t know what it’s like to be helpless! They don’t know anything about our lives, and they of all people should understand that everyone is different. How can they complain that we stereotype them when they are doing exactly the same? Sometimes it’s the little things that matter the most. For example, my hands are only a part of me. They don’t affect my heart, brain, ability to walk, or anything major, yet they have such a profound affect on my life. Just today I was in my bathroom standing over my sink swearing because I couldn’t get my right hand to get the toothpaste on the long skinny thing that is my toothbrush. I had toothpaste all over the sink, all over my hand, I was about to give up. You’d never think shaky hands are that important, and that’s the exact stance that the medical field take on it. It isn’t harmful to my health so they haven’t bothered to research it. Because they haven’t bothered to research it, there’s nothing that can be done about it.
No I can’t say I know what it’s like to have an sci. I know as much as I possibly can without experiencing it. I don’t know what it’s like to be incontinent, impotent and all that. I do know what it is like to want something, to need something, and it is just out of my reach. I know what it’s like to have everyone stare at you, feel sorry for you. I’ve felt the pain of not being able to carry popcorn at the movies myself because of my physical limitations, my dad actually left me on my own once with a huge tub of popcorn, I was so embarrassed, I had to climb a huge flight of steps with popcorn flying everywhere.
I’m sorry if it seems like I’m focussing on my physical problems the last few weeks in my posts but I need those of you who are disabled to understand that I have felt the pain of being physically limited in some way. I have been there, done that. Don’t assume that I’m totally oblivious to the sufferings of having a disability, not all disabilities are as obvious as a wheelchair.
[tags]CareCure, Argument, Assumptions, Limitations, Blog[/tags]This entry appears in Other's Thoughts, Sophie's Thoughts, Thoughts. You can follow any responses to this entry through the RSS 2.0 feed.
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