Comments on: It taints everything it touches http://transabled.org/thoughts/it-taints-everything-it-touches.htm Talking about Body Integrity Identity Disorder - Just another disability! Sat, 10 Jan 2009 01:04:34 +0000 http://wordpress.org/?v=2.7-beta2 hourly 1 By: Ana McCann http://transabled.org/thoughts/it-taints-everything-it-touches.htm/comment-page-1#comment-16247 Ana McCann Mon, 10 Nov 2008 22:23:41 +0000 http://transabled.org/thoughts/it-taints-everything-it-touches.htm#comment-16247 I really feel for you- I know how exhausting BIID can be, but I myself seem to have these very intense spots on a more on/ off basis. The underlying need is always there, but the intensity varies from month to month. Sometimes it pushes all other thoughts from my mind- but at other times I get through the day and just sink into the BIID world inside my head as bedtime approaches and my time is my own. Maybe it helps having kids in this respect- they are the ultimate distraction (as well as the ultimate cage to prevent me doing what I'd like to do to myself...)! I really feel for you- I know how exhausting BIID can be, but I myself seem to have these very intense spots on a more on/ off basis. The underlying need is always there, but the intensity varies from month to month. Sometimes it pushes all other thoughts from my mind- but at other times I get through the day and just sink into the BIID world inside my head as bedtime approaches and my time is my own. Maybe it helps having kids in this respect- they are the ultimate distraction (as well as the ultimate cage to prevent me doing what I’d like to do to myself…)!

]]> By: Kyla http://transabled.org/thoughts/it-taints-everything-it-touches.htm/comment-page-1#comment-1560 Kyla Tue, 06 Mar 2007 08:16:53 +0000 http://transabled.org/thoughts/it-taints-everything-it-touches.htm#comment-1560 I'm very much aware of the overwhelmingness of the transabled condition, as the thoughts of it inflict themselves on our every action. Every single thing that I do, from the time I wake up, until the time I go to bed - and even the way I sleep - would be different if I were to have my body adjusted to the condition with which I would be comfortable. As such, it becomes impossible to put it out of my mind. I've heard others suggest that the 'obsession' with the condition should be treated with OCD treatments, which strikes me as a clear demonstration of complete lack of understanding of the condition we face. I draw comparison to the inverse of my condition: If it would be considered unreasonable for one who has lost her arms to just go on as though the condition didn't affect her, then why is it seen as reasonable to expect me to go on with my own arms present as if it were something that I could just ignore? Truth be told, I'd be more than happy to donate my own arms to someone who needs or wants them. They can transplant a kidney, at great risk to both donor and recipient; yet they can't (and won't even consider as reasonable to) transplant a limb from one who neither wants nor needs it, to someone else who does. Why? I’m very much aware of the overwhelmingness of the transabled condition, as the thoughts of it inflict themselves on our every action. Every single thing that I do, from the time I wake up, until the time I go to bed - and even the way I sleep - would be different if I were to have my body adjusted to the condition with which I would be comfortable. As such, it becomes impossible to put it out of my mind. I’ve heard others suggest that the ‘obsession’ with the condition should be treated with OCD treatments, which strikes me as a clear demonstration of complete lack of understanding of the condition we face.

I draw comparison to the inverse of my condition: If it would be considered unreasonable for one who has lost her arms to just go on as though the condition didn’t affect her, then why is it seen as reasonable to expect me to go on with my own arms present as if it were something that I could just ignore? Truth be told, I’d be more than happy to donate my own arms to someone who needs or wants them. They can transplant a kidney, at great risk to both donor and recipient; yet they can’t (and won’t even consider as reasonable to) transplant a limb from one who neither wants nor needs it, to someone else who does. Why?

]]> By: Marie http://transabled.org/thoughts/it-taints-everything-it-touches.htm/comment-page-1#comment-829 Marie Sun, 11 Feb 2007 04:02:08 +0000 http://transabled.org/thoughts/it-taints-everything-it-touches.htm#comment-829 Yeah, that is a tough rub. One place where the similarities diverge, unfortunately. Yeah, that is a tough rub. One place where the similarities diverge, unfortunately.

]]> By: Sean http://transabled.org/thoughts/it-taints-everything-it-touches.htm/comment-page-1#comment-828 Sean Sun, 11 Feb 2007 03:24:27 +0000 http://transabled.org/thoughts/it-taints-everything-it-touches.htm#comment-828 Marie, yes, you're right. But... Tell me... Just *what* is the way forward? The only way out of this miasma, for me, is to be a para. There are no real ways to accomplish that. It's part of what makes it even more frustrating. As a transsexual, you would know there is a way out, even if it takes patience and mucho $$. As a transabled individual, there isn't. *shrug* Marie, yes, you’re right. But… Tell me… Just *what* is the way forward? The only way out of this miasma, for me, is to be a para. There are no real ways to accomplish that.

It’s part of what makes it even more frustrating. As a transsexual, you would know there is a way out, even if it takes patience and mucho $$. As a transabled individual, there isn’t.

*shrug*

]]> By: Marie http://transabled.org/thoughts/it-taints-everything-it-touches.htm/comment-page-1#comment-827 Marie Sun, 11 Feb 2007 01:15:55 +0000 http://transabled.org/thoughts/it-taints-everything-it-touches.htm#comment-827 Nothing can be repressed forever. Eventually it must be dealt with. Moving forward isn't always easy, but it's always beneficial in the long run. Nothing can be repressed forever. Eventually it must be dealt with.

Moving forward isn’t always easy, but it’s always beneficial in the long run.

]]> By: Sean http://transabled.org/thoughts/it-taints-everything-it-touches.htm/comment-page-1#comment-826 Sean Sat, 10 Feb 2007 23:21:38 +0000 http://transabled.org/thoughts/it-taints-everything-it-touches.htm#comment-826 Well rorsach, the thing is, without having the chair, it would be unbearable. With the chair, I can at least survive through my days. The thing is, everyone's journey is different. It's not because *I* am having it harder as I grow older, as time goes by, that you necessarily will. Although I must admit, anecdotal evidence seems to indicate that it gets indeed worse with time. Well rorsach, the thing is, without having the chair, it would be unbearable. With the chair, I can at least survive through my days.

The thing is, everyone’s journey is different. It’s not because *I* am having it harder as I grow older, as time goes by, that you necessarily will. Although I must admit, anecdotal evidence seems to indicate that it gets indeed worse with time.

]]> By: rorschach http://transabled.org/thoughts/it-taints-everything-it-touches.htm/comment-page-1#comment-825 rorschach Sat, 10 Feb 2007 23:09:55 +0000 http://transabled.org/thoughts/it-taints-everything-it-touches.htm#comment-825 Kind of makes me think twice about getting a chair. It seems like a chair is buying a precious few moths or years in some cases of freedom. After that though things go back to normal, and then to getting progressively more intrusive. I don't think it will stop me from buying one, but it makes me think. Kind of makes me think twice about getting a chair. It seems like a chair is buying a precious few moths or years in some cases of freedom. After that though things go back to normal, and then to getting progressively more intrusive. I don’t think it will stop me from buying one, but it makes me think.

]]> By: Sean http://transabled.org/thoughts/it-taints-everything-it-touches.htm/comment-page-1#comment-823 Sean Sat, 10 Feb 2007 20:48:09 +0000 http://transabled.org/thoughts/it-taints-everything-it-touches.htm#comment-823 Yeah, that's pretty much what I mean. Ohh, I guess there are moments where I'm not overwhelmed by thinking how different it would be. And it doesn't hurt as bad when I *am* wheeling. But by and large, it's relentless. And yes, it's exhausting. I wrote a bit about it here http://transabled.org/thoughts/living-life-is-exhausting.htm though that post also focuses on depression. <shrug> Yeah, that’s pretty much what I mean. Ohh, I guess there are moments where I’m not overwhelmed by thinking how different it would be. And it doesn’t hurt as bad when I *am* wheeling. But by and large, it’s relentless.

And yes, it’s exhausting. I wrote a bit about it here http://transabled.org/thoughts/living-life-is-exhausting.htm though that post also focuses on depression.

]]> By: jen http://transabled.org/thoughts/it-taints-everything-it-touches.htm/comment-page-1#comment-822 jen Sat, 10 Feb 2007 19:41:07 +0000 http://transabled.org/thoughts/it-taints-everything-it-touches.htm#comment-822 Oh man. You mean there's never a minute in your day when you're just in the chair and that's all there is to it? Oh man. That must be exhausting. Oh man. You mean there’s never a minute in your day when you’re just in the chair and that’s all there is to it?

Oh man. That must be exhausting.

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