Blog > Thoughts > Sean's Thoughts > Congenital vs. Acquired

Congenital vs. Acquired

Avatar for get_the_author

Written by Sean on Saturday, October 28, 2006

Is BIID already within us as we are born, or is it something that grows in us as we grow up? Interesting question for which we are unlikely to know the answer to anytime soon.

I was asked why I said that I didn’t think that acquiring an SCI would "cure" me of BIID. The answer to that question made me think of the title of this post. I have a feeling that whatever made me feel that I need to be a paraplegic would not magickaly disappear with the advent of a spinal cord injury.  As a paraplegic, BIID would leave me in peace, but would not leave me entirely. I would have "asymptomatic BIID"!

Pregnant woman and wrapped gift.

From the womb, or gifted later?

Besides, I still would be apart from a "true" para: one could argue that because I chose to become paraplegic I would lack a major part of a "real" para’s experience – the lack of choice in the matter. I could see paras from accidents/physical illnesses shun me because I would have opted for the impairment. Someone I know who is a leg amputee by choice related to me that they felt they’d be lynched were it known in the amputee community that he did it to himself.

As such, I would still be transabled. A bit like a post-op transexual is still transexual after even the best surgery.

But then I think back to my earliest memories. I was 3 or 4 years old when I started longing to be paralysed. If it was acquired, it was acquired pretty darn early, before I even really understood what is paralysis. So on that basis I could say that it was borne within me at my birth, whatever "it" is, because it couldn’t possibly have sunk in and be acquired that quickly, and particularly at such a young age (well, of course young minds can assimilate a heck of a lot, but I doubt a 2 year old could process the concept of wanting/needing to be paralysed.)

But then, there’s no "paralysis gene", like one might explain Gender Identity Disorder by having mixed up chromosomes, genes or whatnots. If a transexual says I was born a woman in a man’s body, they can show that they do have something in their body chemistry that is perhaps closer to a woman than a man. And while you may be born with a disability, it’s not really a gene.

Part of me would *like* it to be congenital. Because that would imply that I never had any choice in the matter, it is part of my making. Acquired BIID is unlikely to be a matter of choice if it’s acquired at such a young age, but still, if it’s *acquired*, there is a part of me that can’t help thinking that it can be "de-acquired" (and certainly many people in society feel the same). That perception is not logically accurate, but it’s hard to fight such feelings.

I guess it’s not so dissimilar to those people who think that depression is something you can just "snap out of". If you’ve had depression, you know it’s not a matter of snapping out of it. But still, you wish it was that easy.

I’ve been fighting BIID for so long. I’ve been hoping that I could find a resolution for it. I looked for answers, thinking that if I found the cause, I could then find an answer, a solution. If I knew how I acquired it, then, I would be that much closer to understanding how to resolve the issues that caused me to acquire it. The concept that BIID is congenital is very attractive indeed. It gives me a safe haven, a reason to stop fighting. Because I’m so tired of fighting.

In the end though, for me, it makes no real difference whether it’s congenital or acquired. If it’s the later, it was acquired so young as to make no difference.

Still… I don’t believe that being paralysed would make me suddenly "un-transabled". Like putting a patch on a flat tyre doesn’t remove the hole. The hole is still there, but it doesn’t matter anymore.

[tags]Transabled, Congenital, Acquired, Surgery, GID, BIID, Paralysed, Birth, Fighting[/tags]
 

This entry appears in Sean's Thoughts, Thoughts. You can follow any responses to this entry through the RSS 2.0 feed.

You can skip to the end and leave a response. Pinging is currently not allowed.

3 Comments

1 On 28 October, 2006, John said:

Avatar for John

Sean,

Nice points. Just because something is ‘acquired’ certainly doesn’t make it reversible or your choice; you are right on those points. To me, being transabled seems to have both congenital and acquired elements. Somehow one might be predisposed to being transabled and one or more events help trigger or fixate things. The triggers that I remember–if they really did trigger being transabled–happened when I was 5 or 6. We certainly had no choice nor understanding of BIID at that age!

If a miracle (??) happened and I became a paraplegic (or you did, etc)it seems logical that we would remain transabled. What I don’t know is if the transabled state of mind would ever evolve into anything else. That, for me, is why this isn’t a choice or something that we can get rid of; I simply can’t conceive of not wanting to be paralyzed.

If you find out how to snap out of depression, please let me know ;)

John

 

2 On 29 January, 2007, Marie said:

Avatar for Marie

When it comes down to it the difference between congenital and acquired (“nature vs. nurture”) it doesn’t matter. The suffering is real and its source has no bearing on it.

 

3 On 9 March, 2011, Angy said:

Avatar random

Dear Sean,
Your words touched my heart. And I just would like to tell you that I really think: till you’re happy or find harmony in your life perhaps it doesn’t matter at all if all this is congenital or acquired.
I hope the fact your “fight” has inspired and helped so so many people, including me and my family, gives you a little relief and joy. Maybe loving ourselves more can help in the long run.
xoxo
Angy (BIID one for -at least :)- 19 years)

 

Post your comments

Comment info


(required)


(valid email required)



(required)

Send

Anti-spam - answer to confirm you are not a spam bot


 

© transabled.org - 1994-2012 - All Rights Reserved.

About Sean

Sean is transabled. His body image is that of an L2 paraplegic. He has been living pretty much 100% of his public life from a wheelchair for the last decade, but hasn't found peace of mind (and is unlikely to until he does become a para).