Home / Thoughts / BIID, depression, winetasting, and other ramblings on hopelessness

BIID, depression, winetasting, and other ramblings on hopelessness

Avatar for get_the_author

Written by Sean on Monday, March 31, 2008

I’ve been silent a while. I have some stuff to say, but it’s bleak, very bleak. And I don’t want to give the impression I’m whining (and no, that’s not the reference to winetasting…). I’ve been dealing with an old nemesis, depression, and a renewed and somewhat intensified BIID related hopelessness. All that mixed together and the picture isn’t pretty.

If you’ve been reading my blog entries for a while, you’ll know that depression has been at me for a long, long, looooong time. I think it started in my teens, but it might have been before even that. I’m not sure. Over the years, I’ve come to learn the different textures, the different "tastes" of my depression. They can be quite subtle, like wine. And if you’re not familiar with depression, you’re not likely to be able to perceive the different nuances. But take it from me, there are different levels (that’s a given, isn’t it?) and different "feels" to depression.

I said a few times that depression and BIID cohabitated, that one wasn’t the cause of the other, nor vice versa. I’m still convinced that my chronic depression is not directly cause nor effect to my BIID. Although they can aggravate each other, of course. But I’m left wondering, does BIID have its own level of depression, or bleaklessness, or something?

Over the last few months, the chronic depression that I’ve been dealing with has abated significantly. I attribute this to both my therapist, although I haven’t seen her since last year, and to exercise. It has made a world of difference in my life. The chronic low level stuff, and even the peaks of accute depression have been reduced. not gone, but reduced enough that there was space for more. At first, I felt buoyed by this disappearance. And little by little, it got filled up by BIID related hopelessness.

I don’t know if it’s depression, per se. It could very well be. But it doesn’t feel like the other depression. It is bleaker, darner, more bitter. And in this space, there is no hope. In contrast to "the other" depression, it’s not being shaken by exercise, or anything else. I told a friend the other day that I’d had a productive day, but I still felt like sh*te. She observed that usualy, when she had a productive time, she didn’t feel quite so bad. And it used to be like that. Being able to somewhat shake it, even if for a few hours, by accomplishing something tangible.

But not this. Nothing shakes it.

Now, as I see it, I have three options ahead of me:

  1. Continue living in this hell
  2. Die
  3. Become a paraplegic

Well, option #1 is not desirable. It’s ripping me apart, destroying me. I’ve never been committed because of my depression, but it’s not because I couldn’t have. I’ve had times where I stayed in bed for days on end, not getting up for *anything*. Not pretty. And frankly, I don’t care to get back there, and I fear I’m not far from this. It’s too much. It is too much. And the problem here is that it’s "all in my head". You can’t see it. You can’t touch it. And because it’s that way, it’s entirely too easy to dismiss it. Heck, even medical professionals are dismissing it, as per a recent post in a discussion group! How many people have thought it can’t possibly be that difficult, that painful? Why is it that emotional pain is dismissed and doesn’t rate compared to physical pain? I’m not talking about just a bad case of the blues here, I’m talking about a rip-you-apart kind of pain. One that makes you want to smash your skull against the wall to make it stop. To please, just make. It. Stop. But it doesn’t stop.

And so to escape that, you have option #2. But as I often joke, "suicide is not a viable option". I do not want to die. I don’t have any desire to kill myself. The only reason I even think about it is because of the overflow of pain. The amount of pain is exceeding my ability to deal with it. They say that people who talk suicide are only really crying for help. Well, this is me, HEAR ME OUT: I am crying for help. I am telling you that there are no tools left, but one, for me to avoid this. I can’t go on like this.

Or perhaps I can. I’m like a rubber balloon. you fill it with water, ever so slowly. It stretches and stretches. You think you can’t fill it up anymore. But another drip goes in, and the sides expand and stretch. The balloon becomes more translucent, but keeps stretching. Ohh, you couldn’t *possibly* fit any more in there. But you do, miraculously (wretched miracle), you can add water to the balloon. Eventually, it *will* explode, and it’ll make a bloody mess. I’d rather not get to that point though. I’d rather not.

So that leaves option #3. And we all know that’s not really an option either. The people who *can* won’t. The people who have the knowledge, the doctors, won’t assist with "injuring a perfectly healthy body", conveniently forgetting that *health* is a whole, it’s not just about the physicality of a body, but about the joint state of body & mind. I won’t discuss the barriers (real or imagined) the doctors have in providing surgery for BIID, I’ve done that before elsewhere and I’m likely to again. So, the medical folks, won’t help. Self-injury is, at best, very risky and rather unreliable. There are methods that people have used with some level of success (don’t ask, I won’t discuss self-injury techniques here). But the same methods that have been used with success have left other people with no paralysis, yet chronic nerve pain. Besides, to achieve the level of paralysis my BIID makes me require, I could not use these techniques by myself. So I have to resort to a third party. That is just as tricky, isn’t it? Self-injury is too risky. Assisted self-injury requires finding someone willing to take the risk of being done for assault (they don’t even have the protection of being a doctor and acting under a "cutting-edge" medical concept.

So, where does that leave me? Where does that leave you? Where does that leave us?

[tags]Depression, BIID, Paralysis, Suicide, Surgery[/tags]
 

This entry appears in Sean's Thoughts, Thoughts. You can follow any responses to this entry through the RSS 2.0 feed.

You can skip to the end and leave a response. Pinging is currently not allowed.

2 Comments

1 On 1 April, 2008, Katie said:

Avatar random

Dear Sean,
thank you ever so much for this website - I came across ist about two months ago and now finally this current state of mine has a name! I coincidentially learned about BIID, transabled and pretending. Before that, I have been asking myself for 24 years what the hell I was doing all the time and why. I really thought I was the only person in the world having that kind of desires - sitting in a wheelchair, not feeling where my legs are and while I’m writing that I’m wearing a leg brace that I don’t actually need. Yet I’m more or less over one of my longest BIID-”attacks” if you can call it so - of my life. I’ve been abroad for a couple of years and during this time it never struck my like that, now that I’m back, I’m suddenly experiencing these feelings more than ever. Still - dealing with some other problems I came across a “new” (for me anyway - it’s not really new) method of solving psychological problems which helped me big time on other issues. Have you ever heard about “family constellations” according to Bert Hellinger? I know it’s a very controversial thing, but for me and my family it worked in a way that I would never have imagined. The next time I see my therapist, I’m determined to talk to him about this condition and I’m confident there will be at least a step forward.
It has to be a therapist whom you absolutely trust, though - there are enough of the other sort…
I really want to stop thinking about being paralyzed, about thinking how to immobilize my joints, pretending to need crutches, happily exaggerating a tiny sprain of my ankle just in order to get a cast and crutches again, walk away in an orthopedic corset etc.
I want to be happy and grateful about my (almost) perfect, healthy body with it’s four beautifully shaped limbs again , just as a normal thing, without having to fight my actual feelings.
I recently had the occasion to go out pretending in a wheelchair borrowed from a friend and it was so tempting, but on the other hand I thought it was like crossing a line where there is no turning back. So I think I will turn it down and try to fight it. I just want to believe there will be a time, when it gets easier and I’ll do anything to get over it.
Sorry for any mistakes - I’m not a native speaker. I hope you can still get what I’m trying to express.
I wish you all the best and thanks again so much for sharing your feelings with us. I can’t really tell what it means to me to know that I’m not the only person in the world feeling like this. May you find a way of become your true self - whatever that looks like!

Cheers, Katie

 

2 On 1 April, 2008, Sean said:

Avatar for Sean

Hullo Katie, thank you for your comments. I am glad that you have finally learned that you are not alone in your feelings. It makes a huge difference, doesn’t it?

Your control of English is very good. I would not worry about it if I were you. Your English is much better than my German anyway ;)

As for “family constellations”, I had not heard of it. I read up on it a little bit and I’m not convinced it would do anything for BIID, but it’s worth a try. Please let me know how you get on :) I have tried many different types of therapies that have done nothing at all, so I am a little cynical about the ability of therapy to help with BIID.

As for wanting to stop thinking about being paralysed. Yes, I understand that. But… You have to accept that you have BIID. You have this condition. You did not ask for it. Life would be easier if you did not have it. But you do. Accept it.

I can’t tell you whether you should go out using a wheelchair or not, that is your decision. But I can tell you that for me, it is the *only* thing that helps me retain some remnants of sanity. Claire and Robin also have experienced significant emotional well-being from using a chair (although it complicates things at the same time).

Good luck, and keep on reading and posting :)

 

Post your comments

Comment info


(required)


(valid email required)



(required)

Send

Anti-spam - answer to confirm you are not a spam bot


 

© transabled.org - 1994-2009 - All Rights Reserved.

About Sean

Sean is transabled. His body image is that of an L2 paraplegic. He has been living pretty much 100% of his public life from a wheelchair for the last decade, but hasn't found peace of mind (and is unlikely to until he does become a para).