Paralysis Resource Guide

by Chloe - 21 May 2011

I recently acquired the second edition (2011) of the "Paralysis Resource Guide" from the Christopher and Dana Reeve Foundation/Paralysis Resource Center; accessed via http://www.paralysis.org. I don’t pretend to have the literary talent to offer what might be called a book review. However, I would like to share some thoughts and feelings I had while reading the guide.

Paralysis Resource Guide continues »

Bilateral KAFOs Become Normal

by Chloe - 23 April 2011

Buckling under tremendous peer pressure from Sean and Art, I decided to try out bilateral KAFOs with wheelchair as my standard presentation. I have done this countless times before, but not as my daily norm; not at work.

Bilateral KAFOs Become Normal continues »

My Muscle Spasms

by Chloe - 8 December 2010

I have two entirely separate conditions, both of which are associated with muscle spasms: fibromyalgia and the minor SCI. As a child I had no idea that paralysis would come with muscle spasms, so I can’t honestly say they are an integral part of my BIID. Mine are much less substantial than those of my friends who have more significant SCIs. Consequently they by and large serve as pleasant reminders of things to come. Not always so pleasant…

My Muscle Spasms continues »

Musical Paralysis

by Chloe - 10 November 2010

My friend Dave, who accompanied me on my first wheelchair hike, plays viola for the Salt Lake Symphony Orchestra. He was able to get us tickets for yesterday’s "Schumann Celebration". I was not expecting paralysis to be any kind of focus for the evening.

Musical Paralysis continues »

A Day in KAFOs

by Chloe - 28 October 2010

We needed to get our car fixed, so I wasn’t going in to work last Friday. Alicia and I would be spending most of the day together, and it was a nice opportunity to satisfy my occasional desire to wear bilateral KAFOs. I wore my hot pink outfit. It is no longer a concern that anybody might look at my braces. It’s just irrelevant to me, though sometimes it can be entertaining.

A Day in KAFOs continues »

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