Bilateral KAFOs Become Normal

by Chloe - 23 April 2011

Buckling under tremendous peer pressure from Sean and Art, I decided to try out bilateral KAFOs with wheelchair as my standard presentation. I have done this countless times before, but not as my daily norm; not at work.

Bilateral KAFOs Become Normal continues »

My Muscle Spasms

by Chloe - 8 December 2010

I have two entirely separate conditions, both of which are associated with muscle spasms: fibromyalgia and the minor SCI. As a child I had no idea that paralysis would come with muscle spasms, so I can’t honestly say they are an integral part of my BIID. Mine are much less substantial than those of my friends who have more significant SCIs. Consequently they by and large serve as pleasant reminders of things to come. Not always so pleasant…

My Muscle Spasms continues »

Paraplegia Sucks!

by Chloe - 13 September 2010

Most of us try to educate ourselves about the impairment that we need. A great deal of information can be found in books and on the internet. Recently, things became more up close and personal for me on account of my friend in hospital.

Paraplegia Sucks! continues »

Consistent Presentation

by Chloe - 23 August 2010

My disability presentation has evolved over the last two years. It has lacked consistency, both over time and also between different groups of people. I’m not sure I could have done it any other way. I needed to experiment in order to find an optimal presentation for treating my BIID. These things simply weren’t obvious to me ahead of time. However, it leaves me with the discomforting baggage of being known in different ways to different people.

Consistent Presentation continues »

Just Being Normal…

by Elisabeth - 1 August 2010

The media presentation of people with disabilities is that of heroes, inspiration for others. The more I am spending time with PWDs, the more I see that being heroes and inspiration is generally not on their mind. All they want is to be accepted as equal. They want to be given the same chances at their shot for life. Most of them have no desire to be special, they want to be normal.

Just Being Normal… continues »

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