by Chloe - 7 January 2009
Fibromyalgia is the only physical condition I have that is truly disabling. It considerably impacts how I manage BIID. There are also lessons I can learn from it. A lot of us seem to have impairments unrelated to our BIID. It is useful to contemplate how they interact.
Fibromyalgia and BIID continues »
by Chloe - 10 November 2008
It is important to me to try to prepare myself emotionally for becoming paraplegic. I don’t take this lightly. I am not so naive as to imagine that BIID will protect me from grief and depression. Paraplegia is not just sunshine and rainbows. The adjustment will be tough, physically and emotionally. Recently I read a book that helped me work through some of these issues.
“From There To Here” continues »
by Chloe - 7 October 2008
Almost half way through our road trip: It has felt SO comfortable to be wearing leg braces every day for a week.
Heavy Metal: Part 3 continues »
by Chloe - 23 September 2008
My partner and I just got back from a two week road trip together. I brought my wheelchair, and I also brought my leg braces (KAFOs). It seemed like a good opportunity to experience the relative merits of the different assistive devices in various circumstances.
Heavy Metal: Part 1 continues »
by Chloe - 7 August 2008
July 2nd 2008 was a strange day. My partner had called me at work in the late afternoon to talk about her feelings, having spent most of the day taking care of her disabled sister. When I arrived home she wanted to talk some more about that. After a while she told me that there was something in the bedroom for me. I opened the door. There was my wheelchair; MY wheelchair. My first ever wheelchair! It had arrived. I thought it was absolutely beautiful.
And the Door Slams Shut continues »