by Claire - 31 October 2006
Yesterday was a special day for my 10-year-old daughter. It was one of those
premiers in life, one of those moments you’re supposed to remember forever.
We went out of town for this event, just me and her, and planned some shopping
while we were there, and a visit to a couple favorite places to make a day
of it. It was an event where other children were involved, and parents who
are good friends of mine were also there. It was supposed to be a fun day,
and I had been looking forward to it for weeks.
Missing Half My Life continues »
by Sean - 28 October 2006
Is BIID already within us as we are born, or is it something that grows in us as we grow up? Interesting question for which we are unlikely to know the answer to anytime soon.
Congenital vs. Acquired continues »
by Claire -
I’d like to thank Sean for not simply allowing, but actually suggesting that
I post this here, because I wasn’t going to. Thank you, Sean, for being so
open minded, and so understanding that different people have different needs
when it comes to dealing with BIID. The following is a letter I wrote recently
to a Catholic priest who runs an excellent blog, requesting a Catholic viewpoint
on BIID. He hasn’t responded yet, but if he does, I’ll post his response here.
Dear Father Joe… continues »
by Claire - 27 October 2006
When I was involved with the disability chat group that I moderated, I had a friend named Ben. He was a young man of 24 who had Muscular Dystrophy. He was one of the few with whom I had a special rapport, was very sweet, listened when I needed to talk and had a gentle sense of humour.
What’s in a Lyric? continues »
by Sean - 26 October 2006
I’ve been feeling deflated these last few hours, mulling something over and over in my mind. My spirit is deflated, as well as my tyres! I’ve needed air in my tyres for a few days, I squeal against tile floors. I only wish it was as simple to get my spirits back up as it will be my tyres. It’s not like one can insert an air pump up one’s arse and feel better, is it? What, you’ll ask, is kicking my spirit down? The repeated opinion from members of the medical and psychological community that "because paraplegia involves so much of the body", us paraplegic wannabe are unlikely to see a medical solution to our BIID this side of the millenia.
How many?? continues »